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Allergies, Asthma & Gluten-free
The Allergy Blogs • Sam's Story

His Asthma Needs Action

Samantha Yaffe’s frank take on motherhood with allergies

Our allergic journey is anything but predictable. But until last week, I was relatively confident with my system for allergy management, and the second nature of my vigilance. As it goes, every person who looks after Lucas gets my thorough EpiPen tutorial and a line-by-line explanation of his Allergy Action Plan, which covers all the bases, including the difference between an anaphylactic reaction and an asthmatic one.

In addition to allergies to peanuts, tree nuts, egg and a host of other foods, animals and enviro elements, Lucas is asthmatic. But we don’t carry his puffers unless we’re traveling or going somewhere with animals, which we tend to avoid or really prepare for since he’s so severely allergic to dogs, cats and pretty much all our furry friends.

I also like to keep things simple for others. “When in doubt, give the EpiPen,” is a lot easier to digest than, “if his breathing sounds like this and if you think he ate something, give him this, but if it sounds like that without food, give him this .…”

The EpiPen treats both forms of respiratory distress. The puffer only treats the asthma. So it always seemed better to just send the Epi and keep the need for judgment calls to a minimum.

But here’s the story. Last week, the day after I trained Lucas’s new friend’s mom, we bumped into his family at the park. They were there with their Grandma and her dog. Until this moment, it never occurred to me to ask if someone has a friend or family member with an animal who visits. Turns out Grandma’s little Fifi is shedding fur and dander every day at a house where I was intending to drop off Lucas, sans puffers, Reactine, trial or warning.

The realization that my emergency preparedness was flawed was exacerbated by an incident two days later at another of his friends’ homes. The family had just moved and we were all over at their new digs for a swim and play. When the rain came, the kids adjourned to the basement for some air hockey and Wii time.

Next thing we know, Lucas emerges crying and wheezing, eyes blood shot and swollen, face pale, voice nearly inaudible as he complained about his breathing. To anyone else in the room, he’d appear to be having an anaphylactic reaction.

But it was immediately clear to me that he was having an asthma attack. We whisked him out the door and home within six minutes. Two puffs of his inhaler later we saw some immediate relief, though he reported he was at about a “6” within the hour (10 being normal breathing, as per our ranking system).

The Shedding Machine
Since I knew Lucas’s friend didn’t have any pets, I asked the mom whether the previous owners did – a question I would never have thought to ask before, but the best one I’d asked all day. “They did!” she said with a eureka exclamation.

But this wasn’t just a pet. It was one big, allergenic German shepherd who slept in the rec room shedding fur and dander by the pound for many long, doggy years. The basement, where Lucas’s troubles began, is the only carpeted place in the house and they hadn’t had it steam cleaned, at least not yet.

By bedtime and after two more puffs of his inhaler, Lucas had reached an 8 and my guilt had set in like steel-toed boot to the face.

I don’t send his puffers on playdates, yet never thought to ask about other people’s animals in the house. I was (and still am) sick about it, but it’s a good reminder (and thank God we were there). Honey agreed – “It is a good reminder.”

“A good reminder of what?” I asked, curious about which part he was referring to. “Of the fact that he has asthma, too.”

It’s true. We do tend undervalue the asthma in light of the life-threatening food allergies. But I’m also reminded that no matter how much forethought and vigilance we put into Lucas’s safety and no matter how long we’ve been at it, this journey continues to be one of trial and error, learning, evolving, experience. Even if there’s calm, it’s never static.

His Other Hazards
What’s more, we’re reminded that our kid is seriously allergic to animals. And like peanuts et al, they should be regarded and identified as a highly threatening hazard to his health and safety.

My action plan rushes through this part in an effort to keep the focus on anaphylaxis, but the truth is, animal sheddings are likely lurking in just as many – perhaps even more – places as nut remnants. And as I’ve now learned, a pet-less house can pose a threat if the right questions aren’t asked and proper precautions aren’t taken.

So now – as all things happen in threes –  I’m faced with the third installment of last week’s pet dilemma. Another friend of Lucas, whose house he’s never been to on account of his two cats, has chosen to forego a birthday party to have two of his favourite friends over for a movie and sleepover.

Lucas is honoured and excited to be chosen as one of them, but I’m left feeling triple-stressed about the whole prospect, despite assurances that the house will be cleaned and the cats kept in the basement. I suggested to the mom – who is more than eager to accommodate in any way possible – that we come over a few times to test the waters before committing, but even that feels wrong now.

We wouldn’t take a try-it-and-see approach with a ‘may contain peanuts’ warning on a food label, so does it make sense to take a chance on a house of cats?

On the other hand, with the proper safeguards, I definitely do drop Lucas off at houses with peanut butter in them.

I’m flummoxed by this one.

1. What would you do?
2. Are there any other precautions I should be taking or questions I should be asking to avoid another  unnecessary threat to my son’s safety?
3. Is sending puffers with strict instruction on when to use what, responsible or confusing and hazardous?
4. Does your child’s asthma take a secondary role to his/her food allergies?

Comments

1 - 1 of 1 comments

  1. allergymom1

    When I read your story I couldn’t believe it – it was (almost) word for word my thoughts and and struggles right now for my son who is seven.

    My son also has both severe allergies and asthma. He also is at an age where he is wanting to spend more time visiting friends and having sleepovers. Many, if not all, of our friends and his friends have pets (particularly cats which seems to be worse for my son). I have always dealt with this issue by having an open door policy and having his friends over at our house every weekend and have already hosted MANY sleepovers. I have always been happy to do this but I must admit, it would be really nice to be able to send my son off for the day and have the “break” that I am affording these other parents. We do go as a family to visit some of these homes and feel confident (or as confident as you ever feel as a mom with a child with life threatening allergies and asthma) that should something arise that we can handle it. This despite a recent conversation with my son’s allergist where she advised against visiting homes with pets (especially for meals). She said to me “How would you ever know if he was reacting to the pets or had come in contact with trace amounts of nuts?” Following this appointment I went to all my friends and announced that we would no longer be able to visit and if we did, my son definitey could not be able eat anything while there – therefore no family dinners, etc which we had all enjoyed. I have since reconsidered this position and now we do go out to friends homes, with pets, and we do eat meals there but take our own precautions with dishes, cutlery, and I participate in the meal prep with the hosts (who are all close friends). This allows us all to be social while a the same time protecting our son. We always carry both the epipen and puffer with us and use Aerius preventatively prior to our visits. This has worked for us and everyone is happier with this plan. I am still struggling with my son’s desire to go to friends homes on his own where there are cats and where allergy foods are consumed. For now we stick to being the home where all the kids are welcome and will probably try to keep that going as long as possible.

    We are EXTREMELY fortunate that our son is a “rule follower”, has a level head and is in no way impulsive and always asks “is this safe for me” and if unsure about the answer will simply avoid the food or activity or put wait till he can ask us. I feel that he is fully responsible and self-aware (even at this young age) with when he needs his puffer. Allowing him to go to friends homes (other than our close groups of friends) independently will be the next step = although I believe my son could definitely manage this well – I have to admit – his mom is just not ready yet!!!! So, for now, we will continue to try to be the “funnest” house to have playdates and sleep overs.



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