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PostPosted: Thu Feb 26, 2009 11:22 am 
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Joined: Thu Feb 26, 2009 12:05 am
Posts: 649
Location: AB, Canada
We had a big scare this weekend. Our 5yo son went to a bday party, and dad or I always stay for the whole party. A friend from school was turning 5, and the party was at his house. I stayed for a while, but I had talked to him about leaving for a while and he was ok with it (he's usually a little clingy). I left for 1 hr, when I came back he was red & crying and said he was tired and wanted to go home. I figured he was tired or something happened.

He was very itchy, and a little short of breath (which I first thought was from crying). But I checked his skin and he was quite rashy, I grabbed some Benadryl and called the mom from the party. I asked if he had any snacks 'oh, not much, the kids had some fruit and crackers, oh, and I gave him some peanut butter'. He has never had PB, so I didn't know if he'd react, but I (FOOLISHLY) assumed that group events with young kids were peanut free. His preschool doesn't allow peanuts, and all of the school are peanut free.

He was breathing ok (I have asthma), and I rushed him to the ER., we live close to the hospital. He was given epinipherine, Zantac, steroids, & a ventolin mask. He was wheezy, covered in hives & feverish. We were there for a few hours, and released with the IV attached 'just in case' I was told to take it out after 9.

I know this could have been much worse. My heart is still pounding.
Any advice or support would be greatly appreciated.

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DSs 7,7,9 all PA


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PostPosted: Thu Feb 26, 2009 2:11 pm 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6474
Location: Ottawa
I'm so sorry!
You say he hasn't had peanuts butter before, so continue to avoid peanuts until you see the allergist.

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Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Thu Feb 26, 2009 2:31 pm 
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Joined: Thu Feb 26, 2009 12:05 am
Posts: 649
Location: AB, Canada
Thanks for the reply Susan. Our GP said to just do what we've been doing, but it's so scary. The wait time to see an allergist is about A YEAR!! It's going to be a long time before we have detailed info, and have to figure out what to do til then. I'm going to rule out Tim Hortons & DQ, and I haven't decided about items from bulk bakery bins at grocery stores yet. We've always had them before, but now I'm worried about everything. :(

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DSs 7,7,9 all PA


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PostPosted: Thu Feb 26, 2009 11:11 pm 
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Joined: Fri Nov 23, 2007 12:27 am
Posts: 81
Location: Ontario, Canada
I hope the ER doc prescribed an epipen for you. If not I suggest you call your doctor and get one to have on hand until you see an allergist.

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DS Sept 2006 - peanuts, tree nuts, dairy, eggs, coconut; contact reactions. Asthma. Many animal and environmental allergies.
DS Oct 1990 - Environmental allergies


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PostPosted: Thu Feb 26, 2009 11:16 pm 
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Joined: Thu Feb 26, 2009 12:05 am
Posts: 649
Location: AB, Canada
Yes, we have 2 EPI-jrs. I will also have Benadryl with us and a rescue inhaler.

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DSs 7,7,9 all PA


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PostPosted: Fri Feb 27, 2009 7:32 am 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6474
Location: Ottawa
Call the allergist and ask to be put on the cancellation list. When someone cancels an appointment they will call patients on this list and offer them the appointment. You may have few days notice or a few hours but it's a great way to get in earlier.

I would avoid bulk bins because it is so easy for cross contamination to occur. People swap the scoops. Most bulk stores will tell you that they can't avoid cross contamination.

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Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Fri Feb 27, 2009 1:22 pm 
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Joined: Mon Sep 05, 2005 12:53 am
Posts: 375
Location: Alberta
Not sure what part of Alberta you're in, but if it's the Calgary area, I hope you're on the waiting list for Dr. Stephen Cheuk. We've had 2 prior allergists, and Dr. Cheuk is a standout! Not only did my son have a much more complete set of allergy tests (which added shellfish to our already long list), they have an RT on site who performed spirometry on my son. He was 7, and has had asthma his whole life, but if was so great to finally have the testing done. I didn't even have to ask - they just did it! Every appointment, he's always on time, we're never waiting. We had to wait almost a year the 1st time too, but it really was well worth it.

So hang in there, your family doctor should be able to handle everything in the interim. We've found that nuts have been actually quite easy to avoid over the years, as most places are very sensitive to that allergy. He's never actually had an accidental exposure to nuts, only milk. Always have your Epi-pens too.

One thing that Dr. Cheuk tried with our son proved to be a lifesaver. Our son had a very serious reaction a few summers ago, and he could barely breathe by the time we got him help. Although he hasn't had any asthma symptoms at all in the 2 years prior, Dr. Cheuk advised us to start him back on regular Flovent (the steroid inhaler). Every day. He expalined that since the airways were so reactive, the Flovent may help prevent that symptom should he have another exposure. Well, unfortunately, this theory was tested the following summer :cry: . Low and behold, his lungs did not react (a first!!!!), although he was still a very sick boy, and it was still anaphylaxis, but he did not need epinephrine that time as they just monitored him and loaded up the steroids and antihistamines. So if possible, speak to your family doctor about the Flovent - with a history of asthma and allergy, it's very possible that your son's airways could be helped with regular Flovent (or another steroid inhaler). Ventolin will not help in this case, as it doesn't work to prevent.


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PostPosted: Fri Feb 27, 2009 1:56 pm 
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Joined: Tue Dec 11, 2007 5:52 pm
Posts: 52
Location: Rockland, Ontario
So sorry to hear about your lil guy! We had a great allergist in Alberta too, but in the Edmonton area.

I'm just curious..was there a reason your lil one hadn't had peanut butter before? He didn't like the smell? Or were you avoiding it as a precaution? It just seems to be a staple for all preschoolers LOL (Except ours, of course), and be everywhere!

Hang in there...it does get easier with time :)

Jen

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11 yr old son: ana to peanuts/tree nuts, well controlled asthma, well controlled eczema


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PostPosted: Fri Feb 27, 2009 3:18 pm 
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Joined: Thu Feb 26, 2009 12:05 am
Posts: 649
Location: AB, Canada
Thanks momtobunches, it is Dr Cheuk that I would like to see. We haven't had the referral yet, we're awaiting RAST results. I like my GP a lot, but a few people said I should see a pediatrician instead. Unfortunately, there are looooong waits to get into see them, so I might be better with our GP. My son has been on flovent once, for about a week when a bad cold was causing some wheezing.

JennO72, I don't really know why I had been avoiding them. The ER Dr was also puzzled about it and figured I muse have exeptional intuation or something! I wanted to wait til everyone could have it, and until my twins are old enough to say if something specific hurt. So, for the past few years at Halloween I took out the peanut products. I do have environmental allergies, and me & my kids are prone to rashes, so I decided to wait. He is very picky, and when I did offer it a few times (a bite of my toast) he refused.

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PostPosted: Fri Feb 27, 2009 4:40 pm 
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Joined: Mon Sep 05, 2005 12:53 am
Posts: 375
Location: Alberta
Just so you know, the referral process was a little different than other ones I've had - my doc sent the referral in August, and I didn't even so much as get a phone call from Dr. Cheuk's office until the following spring, but then the appointment happened quickly. He gave us a 2nd appt 3 months later to follow-up on the spirometry results and latest RAST results, and then he gave us a requisition for next year's RAST, gave us a plan to follow, told us what to expect at our next appointment, and told us he needed our doctor to make another referral. I was suprised - once we were "in" with a specialist before, they never needed an annual referral, but my family doc said that this was a new thing, so she would put in the referral again. Think it has something to do with how they're paid. Anyway, we're still waiting for that phone call ... should be in March some time.


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PostPosted: Fri Feb 27, 2009 8:20 pm 
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Joined: Mon Mar 13, 2006 10:47 pm
Posts: 58
Hi Becky,

Sorry to hear about your little one's reaction! This forum is great and the people on here will help you navigate your way through this. I've found a ton of support on this forum! :D

Hope your son is feeling better, and I hope you are ok too ... it can be a pretty scary ride, and if you start feeling anxious, take a deep breath and trust that you will figure it out.


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PostPosted: Fri Feb 27, 2009 11:21 pm 
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Joined: Thu Feb 26, 2009 12:05 am
Posts: 649
Location: AB, Canada
Thanks so much for the support, I really appreciate it (and need it at the moment). I went to pick up a few things at the grocery store today and was almost having anxiety attacks at the packages of nuts and bins of instore buns etc...both are things I use to buy! Definitely a big adjustment, and will take time to get use to.

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DSs 7,7,9 all PA


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PostPosted: Sat Feb 28, 2009 1:17 pm 
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Joined: Fri Jan 09, 2009 1:36 pm
Posts: 37
Hi Becky,

Wow, i can understand your fear in this matter. I'm glad that you were able to get him treatement promptly. It's such a scary time for all involved. Understandibly your first suspicion would be the PB, but remembere reactions can occur (according to our allergist) up to 6hrs after exposure to the allergen. Try and recall everything he had in the last six hours. I'm glad to hear you now have the epi jr's with you. That should give you some peace of mind.

I get so angry when i hear about these long waiting times to see doctors. It's crazy you have to wait upwards of a year to figure out what could potentially kill your child. I agree with the other poster, call the allergist office, beg and plead to be put on a waiting list. Call back to the office frequenly, and polietly ask about cancellations. This way your name will be fresh in their minds if and when something earlier comes up. I don't know if you have a nearby city who would also have ped. allergists, but if you do, i would ask for a referral there in the meantime. For my son we traveled an hour and a half to the nearest allergist. We knew he would get better care there initially so we decided the travel was worth it. I do hope you are able to see a doctor sooner. The anxiety over this is not something you want to be dealing with for a year waiting time.

In the meantime i would likely start a food diary. Record what your son eats daily. If a rash develops or something worse record it. You may be able to find a pattern that may lead you to the culprit. I would probably avoid the PB as you stated, and always carry those epipens. Avoid the buld food stores definitley. Read labels, avoid bakery items as these often can come into contact with allergens. To suggest you stay away from the top allergens until you see the doctor would seem very unrealistic especially since you won't see him for a year. Just be mindful of what is eaten and monitor.

I really feel for you because i know how frightening this time is. I do hope you are able to get into the doc sooner. If it gives you any hope. My son was diagnosed with peanut, and tree nut allergies at age 2. He is now ten and is undergoing food challenges for his allergies. He has outgrown his Peanut, almond thus far, something we never thought he could. So there is hope.

Take care, and if you have any further questions feel free to ask away.

Suzanne


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PostPosted: Sat Feb 28, 2009 5:25 pm 
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Joined: Thu Feb 26, 2009 12:05 am
Posts: 649
Location: AB, Canada
I agree, the wait times are crazy long. Unfortunately the allergist is a few hours away, so it won't be easy for me to go at the last minute, or call/stop by and see if we can be moved up. I'm really anxious to get the RAST results, his blood sample was taken last Monday and we haven't been contacted yet. I did call the clinic a few times and have a follow up appt on Monday to discuss the allergies further.

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PostPosted: Sat Feb 28, 2009 5:44 pm 
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Joined: Fri Jan 09, 2009 1:36 pm
Posts: 37
That's unfortunate Becky. I would still call for a cancellation app't anyway. You never know, sometimes things come up and someone will cancel their app't several days away. I know our allergist doens't want you taking antihimistmanes prior to the app't just in case he has to skin test you...if someone comes down with something and takes a medication containing antihistimanes then that app't might open up.
You probably haven't heard back about the RAST results as it takes at least three weeks for them to be processed and results back to the doctor. That' s one of the reasons the doctors often do skin tests first. They are quicker and offer immediate results unlike rast tests. Plus RAST tests can often have false positive results, so i've read.

Good luck.


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