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PostPosted: Sat Dec 20, 2008 10:09 am 
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Joined: Mon Aug 25, 2008 9:04 pm
Posts: 11
Location: Winnipeg, MB
Hi all,
I don't even know where to start...I know everyone is so stressed with the holidays but I feel it so much more with our son Brayden and his allergies. To top off all the stress filled thoughts of potlucks with our families, our son had a major allergic reaction on Thursday at his daycare. Unfortunately the daycare provider (who is excellent) accidentally gave Brayden soy cheese that actually was not completely dairy free. It still had buttermilk and milk ingredients in it. To make a long (and emotional) story short, I rushed to the daycare, decided to administered his epi-pen, called the ambulance and was at Children's for 6 hours. I basically operated in auto-pilot until 4am the next morning when I had my 'official meltdown' in bed. Fortunately my husband is wonderful and helped me through it. I've been a wreck though since. I'm so easily on the brink of explosion that I flipped out at my sister-in-law yesterday when she so casually told me that her potluck will be totally fine and to relax....and when I found that damn soy cheese at Sobeys. It took my whole will power not to chuck it across the store and scream in frustration.

My friends and family are great but I've decided I need to be in contact with other Mom's in the city (Winnipeg). I don't have the time or energy to go through the various posts and see if this has been talked about. I'm not interested in starting an 'official' group. I just need a couple of Mom's that can totally relate to what I've gone through-even if they've been fortunate and have not had to experience what I went through on Thursday. I do know that in time I will get back to a more healthy level of caution but these last few days that I feel like I'm the only Mom in the city that is going through this worry and anxiety.

If anyone can help me out or provide some suggestions, it would be much appreciated. In the meantime, as I've said to my husband, "let's just get through the holidays with as little incident as possible, and all will be fine!!.


_________________
Mom-Jenn
2.5 yrs old son-allergic to eggs, milk, avoiding nuts for now, mold, mild asthma, fragrance intolerance.
Dad was allergic to yeast as a child and had asthma.
7 mth old son-no known allergies.


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PostPosted: Sat Dec 20, 2008 4:55 pm 
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Joined: Wed Aug 10, 2005 11:21 am
Posts: 688
Location: Cobourg, ON
Sorry to hear about your child's reaction. It is a terrible experience to go through. Thank goodness he is okay.
Perhaps this incident will lead to more caution in reading labels at the daycare. I know mistakes can happen and I am sure daycare feels terrible. Why did the daycare wait for you to give the epipen?
Take care of yourself and try to enjoy the holidays. It may be hard to do but try to relax.
Kate

_________________
13 year old daughter -- lives with life-threatening allergies to milk, tree nuts and peanuts; seasonal allergies (birch, maple, ragweed); pet allergies; asthma; and eczema
10 year old son - no allergies


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PostPosted: Sat Dec 20, 2008 5:18 pm 
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Joined: Mon Aug 25, 2008 9:04 pm
Posts: 11
Location: Winnipeg, MB
Hi kate,
At first the reaction seemed to appear as a minor one (ie: a hive or two appeared) which we typically just treat with Reactine. She had given him this but b/c she didn't know it was the cheese that he digested that caused this, she still wasn't sure if he needed an epi-pen. I told her I would be there right away (5 min away) but that if things got worse to give him the epi-pen right away and call 911. On my way to his daycare, I wished I had my cell phone with me as I would have called her to say just give the epi-pen. When I arrived, to me, it appeard that he needed it. No breathing issues but he was swelling around his eyes and his termperment was off. The daycare provider and I still didn't know that it was the cheese until I asked to see what type of pasta and cheese she used (this was once the epi-pen was given and ambulance had already been called) Once we realized this, I was so glad that we can given him the epi-pen and also thankful that he didn't have a bigger reaction. This was our first time ever experiencing anything like this in the 2 years he's been under her care. Our rule of thumb though now is if he has ANY swelling, epi-pen asap and to emerg. No discussion. Ironically, this was his last day of daycare there. He starts a new one in January. There will be lots of training for the new daycare provider. Fortunately she is my cousin and already is aware of Brayden's medical history.

My husband and I are also drafting up an email again to all our family and close friends, summarizing what happened and attaching egg and milk product info and what to do when he's having an allergic reaction (ie: what symptoms are present). We've double bolded and underlined that in our absence, at no time will we ever question someone's decision to give Brayden his epi-pen. We would rather it be administered even if in the end he did not need it.

Scary stuff but glad we came out of it ok.

_________________
Mom-Jenn
2.5 yrs old son-allergic to eggs, milk, avoiding nuts for now, mold, mild asthma, fragrance intolerance.
Dad was allergic to yeast as a child and had asthma.
7 mth old son-no known allergies.


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PostPosted: Sat Dec 20, 2008 9:05 pm 
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Joined: Wed Aug 10, 2005 11:21 am
Posts: 688
Location: Cobourg, ON
Hi Jenn,

My daughter had her worst reaction at 3 and I learned a valuable lesson. I learned to respond to the symptoms and look for the cause after. At that age, contact reactions happened from time to time. I was in denial during most of her reaction. I was questioning myself about what she had eaten and my mom and looking for the source when I should have just given the epipen right away. I was so sure that she had only eaten safe food and that benadryl was all that was needed. I eventually took her to the hospital and she had epinephrine there. It gave immediate relief.

We have given the same direction to her school. If any symptoms appear, assume that there has been ingestion and give the epipen right away. It won't hurt and her teachers will not have to second guess their course of action.

Once you have more sleep and some time, things will feel and seem better for you. Having a clear plan in place for your family and care provider will give you peace of mind too.
Take care,
Kate

_________________
13 year old daughter -- lives with life-threatening allergies to milk, tree nuts and peanuts; seasonal allergies (birch, maple, ragweed); pet allergies; asthma; and eczema
10 year old son - no allergies


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PostPosted: Sun Dec 21, 2008 12:12 am 
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Site Admin

Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6492
Location: Ottawa
I think it's natural to react the way you did (emotional, rage, tearful, exhausted) It is probably the most stessful thing a mother can go through-potentially deadly reaction of a child.

Try to take it easy-not easy in the holiday season. I'm glad your family are so great. I think you're wise to avoid the potluck, why add more stress at this time?

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Sun Dec 21, 2008 11:41 am 
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Joined: Sat Dec 20, 2008 10:02 am
Posts: 21
Location: Brampton, ontario
I totally understand what you are feeling at this time. ANyone who has watched theire child have a reaction does. Erika ( who wrote the article for parting Shots this issue) had an anaphylactic reaction 10 hours after a food challenge. She was asleep, we were all asleep. She had an angel watching over her because she woke up and came to me. It was scary but I tried to stay calm for her. She went back into shock 3 times from that reaction.
For months, I was afraid to sleep thinking about how it happened at night, I was mad at anyone who questioned me about it maybe not being as bad as I thought. The reality is we beat ourselves up when something happens, we should have been more prepared, we should have supplied the food , trained the caregivers more etc. That experience taught us all so much. It was horrible but so many positives came out of it. I have learnt how to educate better, how to present her case to medical professionals, we know what the procedures are for emergency care and how to work together.

The fear never goes away but that is how we stay proactive. You will breath easier soon. You will also be able to rationalize things by telling yourself and your child how anything she/he eats now is safe. I always provide Erika's food for her so that we dont have to worry about cross contamination. No-one who knows your situation should question that. No-one will be as diligent as you and it just takes the added stress away so you can have an enjoyable night out .

_________________
Daughter Erika ( 12) Allergies: all nuts, peanuts, all legumes, fish, shellfish, bananas, spinach, mulitiple antibiotics, asthma, eczema, heat and exercise reactions. Mulitple environmental allergies


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PostPosted: Sun Dec 21, 2008 8:27 pm 
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Joined: Fri Nov 23, 2007 12:27 am
Posts: 81
Location: Ontario, Canada
As I read your post, I almost felt like I was reading something I would have wrote. I also have a 2 year old son, with the same allergies. Last summer while at his sitters (who is also excellent and very careful) he got hold of a sippy cup of milk and she saw him take a small sip before she could get to him. Up until that point Kaden had never consumed milk, and although he reacts on skin contact, we had no idea how he would react to ingestion. We knew epi immediately at even possible ingestion of nuts, but the allergist was not clear on dairy or eggs. She said the hives started on his face immediately so she gave benedryl and called me. I couldn't really understand what was going on, just heard Kaden...drank milk...has hives...should I give epi. Instead of saying yes I just said I would be right there. So I think I was there only 7-8 mins after ingestion and as I walked in her door she had him out with the epi in her hand about to give it to him. His face was bright read and he was coughing. We waited about 30 secs maybe to see if it was just a cough, but it was getting worse. We both agreed it was time, she asked if I wanted to do it but I said no because I wanted to make sure she would have no issue with it if I wasn't there next time and she did it perfectly. He stopped coughing and started crying at about count 7. The hospital was only a 5 mins drive away so I drove him there. By the time we arrived his skin was blotchy but no hives. After about a half hour he got full body hives and started getting raspy. I questioned the nurse on where the doctor was (had seen no doctor in the building at all) and she said she didn't know and just took my benedryl and gave him another dose, didn't check his oxygen level or anything. I was starting to freak out a little bit, but knew I had another epi just in case, but really did not want to give it to him. By the time we saw the doctor an hour and a half later, who gave him even more to try benedryl to try and get the hives under control, he had been given a total of 25 mls of benedry and his regular dose at that time was 2.5 mls. The whole experience at the hospital that day was so discouraging and I am terrified that if he has another reaction that they will not be prepared to handle it. So yes, I understand what you are going through perfectly. I am still very emotional about the whole thing and am getting teary eyed as I write about it. It is so scarey to think that something that is so common to everyone else could seriously harm your child. And with xmas coming up, and all the food that will be out is just tiring to even think about. I don't think I will really enjoy the holidays. I would much prefer to stay home at our allergy-free house. :) If you ever need to talk, feel free to PM me.

_________________
DS Sept 2006 - peanuts, tree nuts, dairy, eggs, coconut; contact reactions. Asthma. Many animal and environmental allergies.
DS Oct 1990 - Environmental allergies


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PostPosted: Mon Dec 29, 2008 8:30 pm 
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Joined: Mon Oct 29, 2007 11:56 am
Posts: 120
Location: UK
I gave my son his first epi pen shot , at 12 years old, about two weeks ago.
It was his 2nd mystery reaction this year, so we are susepecting some new allergies, and going back to allergy clinic in jan.
I feel that we will never find the cause, and to be frank, i think that mystery reactions with a multiple allergic person like my lad , is something that happens.


once I had made up my mind to use the epi pen, I was pretty calm about it.

In a odd way , i have been waiting for this day for about 10 years. We had been told it would come, and this month was the time.

He is ok, so are we, and we carry on.

I


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PostPosted: Mon Dec 29, 2008 9:00 pm 
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Joined: Mon Aug 25, 2008 9:04 pm
Posts: 11
Location: Winnipeg, MB
Sorry to hear that you had to experience this too. I know what you mean though about a feeling of calm once you gave it. I know the epi-pen gives you approx 15 minutes, but I felt relieved after I gave it because I knew there was nothing more I could do until the paramedics came. Once they arrived, I felt like I could just be Brayden's Mom again. It was an odd feeling of relief!

Hope your son is doing okay and maybe you'll get some more answers with the allergy specialist.

Thanks again for sharing your story. Jenn

_________________
Mom-Jenn
2.5 yrs old son-allergic to eggs, milk, avoiding nuts for now, mold, mild asthma, fragrance intolerance.
Dad was allergic to yeast as a child and had asthma.
7 mth old son-no known allergies.


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PostPosted: Mon Dec 29, 2008 9:53 pm 
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Site Admin

Joined: Mon Feb 07, 2005 6:39 pm
Posts: 2948
Location: Toronto
Hi Jenn and Sarah,

Sorry to hear about the reactions.

Jenn, I completely understand this:
Quote:
I flipped out at my sister-in-law yesterday when she so casually told me that her potluck will be totally fine and to relax...


It's tough when people diminish the risks when you the consequences of a few mistaken bites are so fresh in your mind. Rest assured that there are many here who've been where you've been.

And Sarah, good luck to you with your son. I've been through that period of not knowing what your "new" allergen is. It's an uncomfortable and concerning period of not knowing exactly what's safe to eat. So for his sake and yours, I certainly hope you are able to find some answers from what he'd eaten, and perhaps with new tests.

_________________
Allergic to soy, peanut, shellfish, penicillin


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