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 Post subject: Rice allergy?
PostPosted: Mon Oct 23, 2006 3:03 pm 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
I've been on an elimination diet for my allergies, since it seems I've developed more judging by my chronic hives, eczema and asthma. Anyway, I went down to just eating rice and some meats. Any time I eat, even just rice, I wheeze and break out in hives. My eczema is worse than ever. I've been eating rice for breakfast lunch and dinner, and I am always sick, so I'm farily certain that is what is causing it. My allergist doesn't want to do more tests on me since it always turns up I'm allergic to everything, and she is sort of mad (at me, I guess) because her "wonderful" immunotherapy plan isn't working any more. They act like it is my fault, like it is something I am doing wrong. I'm ready to quit immunotherapy, quit allergists, and hide under my blankets in bed for awhile.

_________________
2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Mon Oct 23, 2006 11:17 pm 
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Joined: Fri Jan 06, 2006 8:22 pm
Posts: 154
Location: Georgia
I forget, were you checked out for EGE (eosinophilic gastroenteritis)? I know I saw another thread about that somewhere here. Sometimes this is the cause of chronic, idiopathic allergic reactions.

HUGS,
Daisy


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 Post subject:
PostPosted: Tue Oct 24, 2006 12:10 am 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
I've been to a few different specialist and none of them seem to agree on my problem. The GI doctor who did my scope actually would not believe me that I had food allergys. I even pulled out my epipen and told him to call my doctor for the RAST results. HE was supposed to check my intestines for damage from some ana reactions I had. He just snickerd and said, "what makes YOU think YOU have food allergies???" Then he told me I have irritable bowel syndrome and sent me on my way with the bill. I am really thinking of getting a second opinion. I still have bloody mucusy bowels and terrible stomach cramps all the time. That's on top of the hives and eczema and asthma. It really sucks.

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2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Tue Oct 24, 2006 12:17 am 
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Joined: Mon Jun 19, 2006 11:58 pm
Posts: 275
Location: on my pc in cp
wow you've been getting some sucky doctors, it's really rough i get that with my eye condition (but i'd have to go to a different city to get a second opinon) but if getting another opinon is an opition that's what you should do, cause seriously you need to find a doctor who listens to you and wants to help you rather then just send you on your way and cash in it's amazing what the right doctor can do for a person's health

i hope you can find a doctor who will listen and help you get better, or at least want to not hide from the world good luck

_________________
allergies - penicillin, benadryl, dust mites, enviornmental & chemical
conditions - dermatographism, eczema, well contorolled asthma
dietary - lactose intollerant, vegatarian


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 Post subject:
PostPosted: Tue Oct 24, 2006 2:39 pm 
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Joined: Sun Mar 05, 2006 1:05 pm
Posts: 528
Location: Burlington, Ontario
I'm with Dustytiger on that one. Get a second opinion, a referral to a different allergist and a different GI doctor. I was diagnosed with irritable bowel syndrome as well, but eating more fibre didn't help one bit, until I figured out I was lactose intolerant. I think that they like to label people with IBS, it's like a catchall disease. They really should have done tests for lactose intolerance to rule things out, but no, I went for 3 or 4 more years with symptoms, because some of the symptoms are the same as IBS.

_________________
15 year old - asthmatic, allergic to cats, dogs, horses, waiting to be "officially" diagnosed for anaphylaxis
12 year old - asthmatic, allergic to tree pollen and mold, OAS
Husband - Allergic to amoxycillin
Self - Allergic to housework only


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 Post subject: Re: Rice allergy?
PostPosted: Tue Oct 24, 2006 6:04 pm 
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Joined: Fri Jan 06, 2006 8:22 pm
Posts: 154
Location: Georgia
shai wrote:
I've been on an elimination diet for my allergies, since it seems I've developed more judging by my chronic hives, eczema and asthma. Anyway, I went down to just eating rice and some meats. Any time I eat, even just rice, I wheeze and break out in hives... My allergist doesn't want to do more tests on me since it always turns up I'm allergic to everything, and she is sort of mad (at me, I guess) because her "wonderful" immunotherapy plan isn't working any more. ..


Shai,

You can be allergic to rice. I was diagnosed with allergic gastroenteritis in my early 30's. I was put on an elimination diet for beef, chicken, pork, eggs, rice, corn, seafood, strawberries, apples, and peaches. Within a week, my bloody, mucousy diarrhea was gone.

It sounds like you just haven't hit on the right combination yet. Some of the rare foods diets rely on things you don't eat very often (perhaps lamb or venison or buffalo) and rotating these foods to avoid developing additional problems. Unfortunately, a food diary is your best bet. Your allergist can point you in the right direction, but some foods may cause symptoms, but no skin test reaction. And vice versa. There's just no obvious answer because you don't have immediate anaphylaxis-type symptoms.

Are you allergic to potato? Could you try meat and potato for a few days? It won't take long for you to notice a difference in the cramping. (It usually takes stools about 3 days to clear up after a bout of diarrhea, but the cramping is usually better the next day.)

What foods are known to cause your anaphylaxis? Of course, you want to avoid these, anyway; just curious. Do you take vitamins? I was advised to lay off supplements until I saw how my system would react to the foods. I would also caution any herbs, teas, etc... while you're doing the elimination diet. You don't want to introduce any other variables.

And you do need lots of naps, by the way. Image It keeps your strength up since you are not absorbing some of you nutrients.

Take care,
Daisy


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 Post subject:
PostPosted: Wed Oct 25, 2006 11:17 am 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
Hi daisy! Thanks for the help.
I don't take vitamins. I have yet to find any that don't contain my allergens.
I have anaphylectic reactions to beans and legumes, and possibly milk (it's been years since I touched anything with milk so it may have calmed down by now). I've been rast tested for a number of foods and environmental allergens. The only one I wasn't allergic to was peanuts. which surprises me because I'm so allergic to other legumes and tree nuts. I was never tested for rice, and my allergist doesn't want to test me any more because she just doesn't like how it turns out I am allergic to everything, and she is a bit upset that my immunotherapy is working as well as she thinks it should. I guess she wants it to look better for her so she will get more customers probably.
When I eat just meat,k fruit, potatos and some veggies I start to feel better. I'm just tired of the rashes. That's the worst.When my allergies flare up my eczema gets out of control and the hives....it's hard to live with the itch. And then I scratch until it hurts because the pain feels better than the itch.
My reflux got under control when I stopped eating the foods I tested allergic to. That's what makes me think it's EE/EG. I was on all kinds of reflux medicine before being allergy tested and they did not work. My throat and esophagus still swelled up to the point I could hardly swollow. Once I got off the foods I'm allergic to it got better. I'm also on nexium right now, but I really think it was the diet change that helped a lot because the medicine did not help before. But, of course, the doctors don't seem to notice the correlation between all of my allergies and my reflux. They kind of blow it off and treat it all seperately. Isn't that stupid?

_________________
2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Wed Oct 25, 2006 8:02 pm 
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Joined: Fri Jan 06, 2006 8:22 pm
Posts: 154
Location: Georgia
Shai,

I was GI allergic to many foods for years, but was not diagnosed until my 30's. Then I followed the elimination diet and felt much better. I did not experience classic respiratory-involved anaphylaxis until after the birth of my daughter. Today, I cannot go near seafood, nuts or sulfites. I am stricly avoiding eggs, pork, rye, ginger and several fruits because they have similar RAST scores as my anaphylactic allergens. (I am afraid of increasing these allergic reactions; I became inhalant-reactive to seafood in the last couple of years.)

My old Allergist (now retired) was a great teacher and physician. When I just had the GI symptoms, I asked him about "cheating" on my elimination diet. (Remember, at the time, I had never had an anaphylactic reaction.) He said if I must "cheat", only do one allergen at a time; don't have 2 allergens at the same meal. He also suggested that I rotate the foods I could eat to avoid developing new allergies.

If I were you, I would not try milk, as you have had ana. reactions to it in the past. If you can get to a point where your system calms down, then try to re-introduce one food and then back off for a week. Record your reaction, or "no reaction", in a food diary. Then re-introduce another food and back off for a week. Record your reactions. This way, you start to get a sense of how your skin test results correlate with your actual reactions, be it eczema, mild GI cramping, etc... Continue to avoid any foods that cause immediate GI symptoms (or other severe allergic reactions like hives).

Even when you get to a point where you can expand your diet, you still need to rotate your foods. This is especially difficult for me, as there are only 3 people in our family. We usually have leftovers, and I love to eat them for lunch. I try to wait at least one day between my "sensitive" foods (such as rice) before repeating them.

I was originally diagnosed as GI-allergic to chicken. (I have not been able to add that back without having stomach pain. I stop there, as I don't want to work my way up to diarrhea or worse.) But I have found that I do okay with Cornish Game hens. Don't know what the difference is, but it works for me! Some have theorized that the hens are younger than a chicken, others have said perhaps it's something different in the feeds. I don't think it's antibiotics or hormones, as I still react to the organic chicken. We use turkey cutlets and pieces for frying, stir-fry and boiling.

I have been able to enjoy beef again, but still can get "crampy" if I have it too many times in one week. This is ok, as it is better not to eat too much red meat, anyway. I use lamb for roasts, ribs and sandwiches. Yummy! But there is just no replacement for a good hamburger or steak. Again, this is as a treat. Image

Same thing with rice and corn for me. I don't eat too much whole corn, but I do get exposed in other foods, as corn syrup is in everything. :? So I try not to over-do it, and rotate these foods with ones that don't bother me at all. Thankfully, turkey is readily available these days.

I hope this helps you. I think Lisa has mentioned her sister also does the rotation diet; perhaps she can offer more direction.

What exactly was your Doc doing for your immunotherapy? Was this for foods?

And at least with the eczema you have a good indicator. :wink: Just go back to some "safe" foods for a couple of weeks and let your system settle down.

Best wishes,
Daisy[/i]


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 Post subject:
PostPosted: Thu Oct 26, 2006 10:46 pm 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
I REALLY hate the eczema. The itching, stinging and burning...it's unbarable at times!
Thanks for the suggestions! I'm actually feeling a little better today. Hopefully I can start exercising again. I've felt pretty bad the past few weeks and haven't had any energy.

_________________
2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Fri Oct 27, 2006 12:41 am 
have you been tested for celiac disease? Dermatitis Herpetiformis can be confused with eczema, and could be the sole cause of this issue.


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 Post subject:
PostPosted: Fri Oct 27, 2006 11:34 pm 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
I have been tested for celiacs. Blood test was positive, but the biopsy was negative. I know I'm allergic to wheat and oats. But I also know it's eczema. It flares up when I even eat a small amount of soy, milk, or other allergens I tested positive too. Plus I had a biopsy of the skin when it first showed up.

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2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Fri Oct 27, 2006 11:53 pm 
just because the biopsy is negative, does not mean you aren't celiac. if your tests were positive, you most likely are. you need to avoid gluten asap to avoid further damage.


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 Post subject:
PostPosted: Sat Oct 28, 2006 10:54 am 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
Oh, I do avoid gluten. I'm very allergic to wheat, oats, and other grains, like spelt. I have a cross-reactivity allergy with most grains. I get terrible asthma, hives, and had to go to the emergency room for it a few times. That's why my doctor said it doesn't matter so much if I do have celiacs because I have to avoid those foods anyway. I just can't understand why I seem to be developing all these other allergies.

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2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Sat Oct 28, 2006 7:52 pm 
if you are getting even a dab of gluten, you will feel reactions. many celiacs feel allergic to everything while their intestines are healing.


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 Post subject:
PostPosted: Sun Nov 05, 2006 1:09 pm 
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Joined: Tue Mar 22, 2005 6:53 pm
Posts: 1454
Location: Canada
Shai, were you eating gluten prior to the biopsy? How much for how long? Doctors are supposed to "prescribe" gluten for those patients who were on a gluten-free diet but sometimes they don't! If you were already avoiding gluten, then the biopsy tells you nothing (other than the fact that you are doing well on a gluten free diet.)


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