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PostPosted: Sun Oct 06, 2013 11:54 pm 
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Joined: Mon Sep 05, 2005 12:53 am
Posts: 373
Location: Alberta
What you're describing is eerily similar to what we went through with our ds. He would have these bouts of severe vomiting one day, be fine the next, then back to it ... on and off for about 10 days. No one else in the family was affected which I thought was strange because usually tummy bugs go around very quickly through us. A few years later it happened again. On an off for days. He actually needed IV fluids for the 2nd bout. His growth slowed down as well. And then, last year came the diagnosis of EoE (eosinophilic esophagitis) and all of a sudden the previous 11 years made sense. It can cause reflux (which he had for the 1st 2 years of his life) and subsequent vomiting episodes, slow growth, etc. We're still in the phase of figuring out what the triggers are (1 was probably the baked milk he was on and we have had to stop it) but what a difference - all of a sudden the boy can EAT! No more sips of water all through the meal, no more taking 45 minutes to eat, at age 12 he said "so this is what it feels like to eat normally!". After we started treatment, he put on 15 pounds in about 4 months. What prompted the diagnosis was food getting "stuck". It would cause intense pain, and he would produce tons of mucus. This happened several times before I read about EoE, and within a few months we were getting a scope to confirm it.

Our GI specialist said they're seeing more and more boys getting diagnosed in early teens, so it's something to think about. If he describes difficulty swallowing, it might be EoE. (Family docs are still pretty new to this diagnosis, luckily ours had 1 patient and she agreed to refer. Interestingly, barium swallow is normal in this condition despite the swollen esophagus.)

ds 13 - ana milk, tree nuts. EoE


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PostPosted: Sun Oct 06, 2013 11:58 pm 
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Joined: Mon Sep 05, 2005 12:53 am
Posts: 373
Location: Alberta
I should have mentioned that the diagnosis of reflux is often made for EoE as well - our treatment has been either swallowed Flovent (100% resolution after 3 months) and Prevacid (prescription acid blocker) which helped with symptoms. Because the treatments are similar, the diagnosis of EoE is sometimes delayed, as it was for us. Most kids getting diagnosed have a history of multiple allergies. One article I read described it as "asthma of the gut", which I thought was clever. It can be triggered by environmental allergens as well!


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PostPosted: Mon Oct 07, 2013 12:09 am 
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Joined: Tue Jun 26, 2007 2:45 pm
Posts: 790
Location: Vancouver, BC
Becky wrote:
I wonder if the vomiting caused the lining of this throat to become inflammed, giving it a 'closed'/hard to swallow feeling?

I'm glad he's doing better. :)

Thanks Becky! I didn't think of that - could be the case.

_________________
DD 2004 Allergy to peanuts, egg, sesame, and new: lentils and chick peas
DS 2006 Allergy to peanuts, tree nuts, milk, egg, kiwi fruit, eczema


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PostPosted: Mon Oct 07, 2013 12:16 am 
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Joined: Tue Jun 26, 2007 2:45 pm
Posts: 790
Location: Vancouver, BC
Momtobunches wrote:
I should have mentioned that the diagnosis of reflux is often made for EoE as well - our treatment has been either swallowed Flovent (100% resolution after 3 months) and Prevacid (prescription acid blocker) which helped with symptoms. Because the treatments are similar, the diagnosis of EoE is sometimes delayed, as it was for us. Most kids getting diagnosed have a history of multiple allergies. One article I read described it as "asthma of the gut", which I thought was clever. It can be triggered by environmental allergens as well!

Thanks for the info, and sharing your experience. I just had a quick read of EoE on the aaaai.org site, and hmmm, I'm not sure it sounds like him. He eats really well 99% of the time, as in like he will eat large adult size portions of foods that he really likes, and almost always eats more than his older sister, who weighs about 7 pounds more than him. He is a small kid - both my kids are small, but DH and I are both short. He doesn't complain of tummy aches except for after the vomiting sessions. Thanks for alerting me to this as a possibility, though! I will continue to monitor and keep it in mind for future. So far, he is fine on the antacid.

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DD 2004 Allergy to peanuts, egg, sesame, and new: lentils and chick peas
DS 2006 Allergy to peanuts, tree nuts, milk, egg, kiwi fruit, eczema


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PostPosted: Wed Oct 09, 2013 12:30 am 
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Joined: Tue Jun 26, 2007 2:45 pm
Posts: 790
Location: Vancouver, BC
So, he's now on his second cold, the first of which was three weeks ago, and I think what triggered the night time puking/reflux issue. His colds always end up with about 24hrs with fever, vomiting, lethargy, and slight wheezing, then it all goes away and he's left with the cough. One of the teachers at school yesterday said his daughter used to sound like that (bad unproductive coughing) but then was prescribed a puffer for use only during a cold and it's worked wonders. I called our allergist's office (he also deals with asthma and is a derm) and got an appt today!

I mentioned the night time puking, the EoE similarities, and the bad coughing, and he thinks it doesn't sound like EoE but also doesn't follow classic reflux symptoms either. He thinks he has bad congestion in the nasal passages which leads to excess mucous production which can lead to vomiting at night as all the mucous pools in the back of the throat. He said it sounds like it's not that bad, and doesn't really need treatment but to make him more comfortable and avoid missing too much school, suggested Nasonex to improve the congestion during a cold, taking singulair at the first signs of a cold to open airways, and ventolin to deal with wheezing and bad coughing during the cold. He also said to wean him off the Ranitidine which was the antacid, but I could try using it during a cold if I feel it helps although he doesn't think it's fast enough acting that it would make a difference. He said if the vomiting continues, we will get sent to an Ear Nose Throat to evaluate for Reflux from acid damage to the throat. Yikes, lots of meds! Hoping this new regimen works!

_________________
DD 2004 Allergy to peanuts, egg, sesame, and new: lentils and chick peas
DS 2006 Allergy to peanuts, tree nuts, milk, egg, kiwi fruit, eczema


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