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PostPosted: Sat May 13, 2006 11:28 pm 
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Joined: Tue Nov 29, 2005 4:04 pm
Posts: 2044
Location: Gatineau, Quebec
This is slightly off topic, but every time I hear about "patient non-compliance" with regards to asthma I think about how ding-dong expensive asthma medication is. My youngest's Singulair is $50 a month alone, plus his puffers. We are lucky enough to have private insurance, but when the company my DH worked for went down the tubes a few years ago, he got another job pronto because we couldn't stomach paying for all the various asthma & allergy meds ourselves.

I realize that lack of funds is not always the reason for patient non-compliance, but sometimes people just can't afford the medication. I would bet that between the group with private health insurance and the group that can get government help, there is another group in between that is just out of luck and has to make do with whatever they can afford. Which might not be much.

Anyway, just a little rant that's been going on in my head for awhile. Had to get it out. :?

What do people who can't afford EpiPens do?

Also, I do think that more education needs to be done with regards to asthma. Many people still think that they must live with the symptoms. That used to be the case perhaps, but not now, not with a good asthma management plan and the right environment/meds/etc.

I met a mom at the skating rink during skating lessons last year who was going on and on about how her son, who was probably 6, couldn't do this and couldn't do that because of his asthma, and I kept thinking, "You need to get to a doctor -- or get a different doctor -- because that's nuts. He should be able to do pretty much everything with the right asthma management plan."

So I think there are many factors for why people might be dying. Ignorance, lack of understanding about what can be done, lack of access to the right resources, lack of money, etc.

K.

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Karen, proud Mom of
- DS1 (12 yrs): allergic to cashews, pistachios, Brazil nuts, potatoes, some legumes, some fish, pumpkin seeds; OAS
- DS2 (1o yrs): ana. to dairy, eggs, peanuts; asthma


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PostPosted: Sun May 14, 2006 3:55 pm 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6429
Location: Ottawa
People need to know that properly with controlled asthma, children should be able to lead "normal" lives.
It has taken us a long time to begin to understand asthma and asthma control as information is usually given after an episode is resolved and usually by then I've been up all night and am not registering much.
Recently I came to know that there is a telephone support line in Ontario. Here is the website:
http://www.on.lung.ca/offices/aec.html
I know of so many adults who have asthma and smoke or who don't carry their puffers. I know of a lot of people who just suffer and don't request to be seen by a respirologist. I had to demand that our pediatrician refer us to a pediatric respirologist.
I hope that more awareness is done.

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Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Sun May 14, 2006 7:44 pm 
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Joined: Mon Feb 07, 2005 6:39 pm
Posts: 2928
Location: Toronto
In answer to Susan's earlier question on the national picture of asthma deaths .. this is from the Asthma Society of Canada:

"Underestimation of disease activity and poor control are the main culprits of asthma deaths. Approximately 500 people die from asthma every year in Canada and over 80% of these deaths are preventable with education and good management,'' says Dr Mark Greenwald, the Vice-President of the Asthma Society of Canada."

It's far too many. Further, Dr. Estelle Simons (pres of the AAAAI) believes several of the asthma deaths may be anaphylaxis. The two are sometimes so hard to distinguish, given the breathing symptoms.


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PostPosted: Sun May 14, 2006 8:02 pm 
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Joined: Mon Feb 07, 2005 6:39 pm
Posts: 2928
Location: Toronto
Also, thought you'd be interested that the statistics are proportional in the U.S. and eyeopening as to the magnitude of this as a public health issue - south of the border, 5,000 people die of asthma a year.

This is from the AAFA's - http://www.aafa.org - site:

Every day in America:
40,000 people miss school or work due to asthma.
30,000 people have an asthma attack.
5,000 people visit the emergency room due to asthma.
1,000 people are admitted to the hospital due to asthma.
14 people die from asthma.


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PostPosted: Sun May 14, 2006 10:10 pm 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6429
Location: Ottawa
Whoa!!!
That is totally unacceptable. :shock:

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Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Mon May 15, 2006 11:29 am 
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Joined: Sun Mar 05, 2006 1:05 pm
Posts: 528
Location: Burlington, Ontario
quote="KarenOASG"]

I met a mom at the skating rink during skating lessons last year who was going on and on about how her son, who was probably 6, couldn't do this and couldn't do that because of his asthma, and I kept thinking, "You need to get to a doctor -- or get a different doctor -- because that's nuts. He should be able to do pretty much everything with the right asthma management plan."

K.[/quote]

So true, Karen, my 2 daughters pretty much do everything they want. My oldest "lives" at a dance studio, and my youngest dances and plays basketball. We were lucky to have a lot of asthma education and good allergists in our area, and we have good asthma plans in place, we control their peak flow, etc. This didn't happen overnight however, I had to ask drs a lot of questions. We weren't automatically referred to an asthma educator right away. You do have to take matters into your own hands sometimes and unfortunately, people are not always educated, they don't always know to ask the right questions. There should be a procedure in place where as soon as you are diagnosed with asthma (or with serious allergies for that matter), you would be referred to the right specialists and councelling. However, our health system being what it is, it's hard to have consistency from one area to another, or one province to another. Something as simple as using your inhaler adequately needs to be reinforced every now and then, especially with chiildren.

_Susan_ wrote:

...asthma control as information is usually given after an episode is resolved and usually by then I've been up all night and am not registering much.
_Susan_"]


This is exactly what happened to us after my daughter's first asthma attack at 4 yrs old. I was so zoned out and :shock: at learning the diagnosis that I realized after we picked her multiple meds and were home for several hours that I was clued out about what was what. I had to phone the pediatrician back (my daughter was treated in her office) to ask her to go over the whole treatment and the meds again. Even then, it took my a while to get the "big picture" about asthma.

Asthma and allergies are conditions that require careful management and reliable ressources. Nothing should be left to chance, and everyone with such conditions should receive the proper information and traning, and that's where the system is lacking.

Of course, even then you will find people who are free-spirited and who can't find it in them to follow strict programs and recommendations as they regard them as "rules". A lot of people, especially young people, take risks doing extreme sports, like jumping out of planes, knowing very well that they endanger their life. They simply like living on the edge. You can lead the horse to water, but you can't make him drink.


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PostPosted: Mon May 15, 2006 1:12 pm 
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Joined: Tue Mar 22, 2005 1:25 pm
Posts: 323
I read the coroner's report (not just what was said in the news!) and I can say that this is pretty close to the report that my parents would have in their hands if luck would not have been on my side 6 years ago... but mine was anaphylaxis! In his report, he does not have anything in there that can rule out anaphylaxis!!!!! I do not care if she smoke pot or if there was an animal in the house! Something caused this and it seems to me that the ones names are just secondary to what could have been the cause.

It may just be that I do take it personnally because I did risk my life as a teenager with allergies and did almost die 6 years ago from "asthma" (I was not even asthmatic at that point!!!!!! )Yes, my ex had a cat and a couple of dogs to which I was allergic, but I took a couple of pills and didn't mind it that much... but fish was later determined to have caused the anaphylaxis!!!! For not being able to rule out anaphylaxis, I think the coroner is pretty direct in his sayings!

I don't know how many of us need to die until they find out that inhaled and saliva can be enough to cause anaphylaxis in some of us!!!!! I'm probably the only one who has found a piece of my meal stuck between my teeth a couple of hours after a meal :roll:... it's not saliva but it's still my allergen lurking in my boyfriend's mouth!!!!!!!!

Mylène :evil:


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PostPosted: Mon May 15, 2006 3:41 pm 
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Joined: Mon Mar 20, 2006 3:03 pm
Posts: 105
Location: Coquitlam
I feel that in order for a reaction to come on so strong and severe there must be anaphylaxis involved one way or another. (Please correct me if I'm wrong I don't know about asthma) If it was asthma would she not of told him to stop the "Physical exertion" ? That is why I still have unanswered questions as I posted before:
Quote:
As a parent I still have questions that are unanswered.

Was protection used?
Was it latex?
If no protection was used. Could there be peanut proteins in the semen?


I would really like a study on this done.
Why was there no mention of this in the report?
Why would this not be considered a possibility?

I am very concerned for all the females out there and their partners.

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Sil


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PostPosted: Mon May 15, 2006 5:56 pm 
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Joined: Tue Mar 22, 2005 6:53 pm
Posts: 1454
Location: Canada
I'm not sure that we will ever know or that we can ever know---Christina's death could have been from asthma. There's also the chance (in my mind still) that it could have been anaphylaxis. It does sound to me though that asthma is a probable cause of death.

I really don't think that the circumstances surrounding her death are anyone's business--all the media attention would be difficult for the family. It has become our concern though because of the way her death was represented in the media. Before the full coroner's report came out the media was suggesting that Christina was a 'test case'--if Christina didn't die from a "peanut kiss" in spite of the fact that she used her epipen "right away" (we now know that she didn't use it right away) then concerns that people could die from kissing or die from anaphylaxis in spite of the prompt use of emergency medication are completely paranoid (or so the media implied). But we *know* that epipens don't *always* do the trick. We also know that allergenic proteins can be passed on through kissing as well as through having ** hours after the allergen was consumed. All the journalists reporting on this issue would have to do would be to check with an allergist on these topics! So there wasn't really any major scientific theory at stake here.

I do think it is a positive thing if the media coverage can raise awareness about asthma...or if taking a look at the circumstances surrounding Christina's death puts a spotlight on the problem of uncontrolled asthma...or allergies for that matter. But it is too bad that it takes someone's death in order to draw attention to these things.

I agree that asthma is too often seen as a trivial disease. I know people who have allergen-induced asthma who have not thought it necessary to go to a doctor about it. When I was a kid and had severe, uncontrolled, I just accepted not being able to breathe sometimes as a fact of life.

When renewing meds, it would help if doctors with asthmatic patients were to ask their patients pointed questions....like....how many times have you used your rescue inhaler last week? do you ever wake up in the middle of the night with your asthma? to ascertain whether their patient's asthma is undercontrol (as opposed to just asking how they have been. the patient's definition of "fine" might not be the same as the doctor's.)


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PostPosted: Tue May 16, 2006 12:47 pm 
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Joined: Tue Nov 29, 2005 4:04 pm
Posts: 2044
Location: Gatineau, Quebec
Just FYI: FAAN has issued a press release on this matter.

See http://www.foodallergy.org/Press_Statements/DesForgesCoronerReport.html.

I like that they quote a teen.

K.

_________________
Karen, proud Mom of
- DS1 (12 yrs): allergic to cashews, pistachios, Brazil nuts, potatoes, some legumes, some fish, pumpkin seeds; OAS
- DS2 (1o yrs): ana. to dairy, eggs, peanuts; asthma


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