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PostPosted: Thu May 17, 2007 11:35 pm 
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Joined: Thu May 17, 2007 11:24 pm
Posts: 8
Location: manitoba, canada
Hi I am new to this does anybody have any ideas how to deal with parents not cooperating with the schools on keeping our kids safe at school ? I am so tierd of defending my liitle one. And parents not understanding the importance of allergy education. It is like they just cannot be bothered. It's not there kid so they see it as a burdon. please help.oh yeah the school is helping alot!!!

_________________
7 yr old with food allergies. egg, treenut, shellfish,fish,cat and enviromental and penicillin. aswell as severe athsma & excema needs to carry 2 epi-pens
12 yr old athsma,seasonal allergies
hubby-athsma, anaphylaxis to bees and wasp


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PostPosted: Fri May 18, 2007 7:59 am 
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Joined: Mon Apr 09, 2007 3:29 pm
Posts: 192
Location: Ohio
I am sad for yout troubles it has to be hard. I deal with only church and food issues and yes there are alot. My oldest has a milk allergy and can't even be around pizza so she has missed out on alot of partys. Maybe a parent teacher meeting and some slides showing an allergic reaction will help. I know the net time my oldest has a severe reaction I am going to take photos so that we have a record of what happens and we can show future doctors and ignorant people.

I homeschool my kids and I can't imagine what would happen to oldest in school. Do you have the same option?

_________________
Karen in Ohio mom of 7
Allergic to tons and tons of food as well as perfumes, scented air sprays and cleaners. Hubby to Fish, ds #2 Shellfish, youngest to Eggplant, potato, Caesin, Raw Tomato & spinach.


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PostPosted: Fri May 18, 2007 11:24 am 
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Joined: Thu May 17, 2007 11:24 pm
Posts: 8
Location: manitoba, canada
THE SCHOOL IS HOLDING AN ALLERGY INFO NIGHT.THAT IS OPEN TO OUR COMMUNITY. THEY ARE HAVING THE SCHOOL BOARD AND THE TRUSTEES, THE URIS NURSE, AND HOPEFULLY HER DR. WILL BE ABLE TO ATTEND. IF HE CANNOT OUR ALLERGY SPECIALIST WILL BE ON A VIDEO CONFRENCE CALL. TO HELP OUT.
AS FOR ANY KIND OF FUN DAY LIKE PIZZA, OR HOTDOG DAY SHE DOES NOT PARTICIPATE. WE PACK ALL OF HER FOOD. WE DO NOT ALLOW ANY FOODS IN OUR HOUSE THAT IS NOT SAFE.
I WAS FEELING OK. WITH HER AT SCHOOL UNTIL A PARENT LET IT OUT OF THE BAG AT A PARENT COUNCIL MEETING THAT SHE HAS BEEN SENDING THE FOOD ANYWAY.SINCE THEN I HAVE BEEN A WRECK WITH WOORY.

_________________
7 yr old with food allergies. egg, treenut, shellfish,fish,cat and enviromental and penicillin. aswell as severe athsma & excema needs to carry 2 epi-pens
12 yr old athsma,seasonal allergies
hubby-athsma, anaphylaxis to bees and wasp


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PostPosted: Fri May 18, 2007 10:11 pm 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6468
Location: Ottawa
If she has been sending the food anyway and the school supervises the eating the school must have known about it. How did they handle the situation? What is the schools' stance on having the food in the classroom?
To me, this woman sounds like a bully. If the means of bullying was anything else, the schools would probably act on it as they seem to all maintain they have zero tolerance. Under their "safe schools" policy. Ironically, all that we want are safe schools.
Here are some facts regarding bullying amoungst children.
Quote:
Social bullying includes behaviours such as: rolling your eyes or turning away from someone, excluding others from the group, gossiping or spreading rumours, setting others up to look foolish, and damaging friendships.

Quote:
Disability bullying includes behaviours such as: leaving someone out or treating them badly because of a disability, making someone feel uncomfortable because of a disability, or making comments or jokes to hurt someone with a disability.

Quote:
Children and youth who bully may show behaviours or emotional signs that they are using power aggressively:
Little concern for others’ feelings
Does not recognize impact of his/her behaviour on others
Aggressive with siblings, parents, teachers, friends, and animals
Bossy and manipulative to get own way
Possessing unexplained objects and/or extra money
Secretive about possessions, activities, and whereabouts
Holds a positive attitude towards aggression
Easily frustrated and quick to anger

http://prevnet.ca/Bullying/tabid/94/Default.aspx

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Fri May 18, 2007 10:35 pm 
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Joined: Thu May 17, 2007 11:24 pm
Posts: 8
Location: manitoba, canada
maybe she is a bully, she was sending the egg in hidden sources like baking.so no one would have questioned it because they were all to use the egg substitutes like water,oil, and baking powder. the class was to be egg free. when Karter started school the admin. agreed that that would be safest. and there was no food allowed in the class at lunch. only at a.m. and the teacher washed all of the kids desks. at lunch they have 2 grade 5 students to supervise and a teacher comes in about every 5- 10 minutes.
now there is no baking or in store baking allowed in the school. they are going to have the three warning rule.
first time the food is sent home with a warning
second time the food is sent home with a warning
third time The parents will need to find anouther place for there child to eat lunch and they will not be allowed to send food to schooll.
they are moving toward making the elementry side egg free.
they are already peanut/nut free aswell as fish/shellfish free.

_________________
7 yr old with food allergies. egg, treenut, shellfish,fish,cat and enviromental and penicillin. aswell as severe athsma & excema needs to carry 2 epi-pens
12 yr old athsma,seasonal allergies
hubby-athsma, anaphylaxis to bees and wasp


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PostPosted: Sat May 19, 2007 10:33 am 
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Joined: Tue Nov 29, 2005 4:04 pm
Posts: 2044
Location: Gatineau, Quebec
Hi there -

I totally sympathize with your wanting to keep your child safe, but I'll be honest - asking others to do a completely egg-free diet sounds extremely restrictive. If the kids are not sharing food and are washing their hands and faces after food and snacks, would that not be enough? If your child were younger and prone to grabbing food and putting it in her mouth, I could understand, but at 7 (grade 1?) ... it sounds very restrictive for the class.

I do think that there should not perhaps be whole eggs or mayo or egg salad if she is highly allergic, nor crafts or games that involve eggs, but food with small amounts (like baking)... I would be okay with that, and my son is also highly allergic to eggs. For me, it's about reducing the risks in a way that everyone can live with. Completely removing the risk, well, I don't think that's possible.

I do think there has to be a balance. I cannot see our school community ever agreeing to asking other parents to go to that length - with using egg substitutes in baking - to keep a classroom so allergen free... You are sure to have a revolt on your hands -- or at the very least, as is happening, you will have people not complying because it is too much. And how is the school going to know if there are eggs in a baked product or not?

Has the school tried brainstorming about other ways to keep allergic chilldren safe? Having a school that is free of peanuts, nuts, fish, shellfish and now egg must be very difficult for everyone. And on top of that, "free" is obviously a misnomer since the odds of a school (or daycare or whatever) truly being free of those allergens is very slim, given that most people really don't know how to comply (or don't want to). The allergic child must still be very vigilant in a school that calls itself "free" of a particular allergen, and not share food or utensils/straws/glasses/etc., always wash his/her hands before eating, etc.

As I said, I do understand your wanting to keep your child safe, but I can see why other parents aren't cooperating.

I realize that what I'm writing might not be very popular, but this is how I feel. But perhaps there are circumstances I'm not aware of, such as your child being so highly sensitive to egg to the degree that even having traces near her is problematic...?

One thing I would do is try to have more adult supervision at lunchtime. For me, that is a very valuable thing to do to keep all kids safe.

K.

_________________
Karen, proud Mom of
- DS1 (12 yrs): allergic to cashews, pistachios, Brazil nuts, potatoes, some legumes, some fish, pumpkin seeds; OAS
- DS2 (1o yrs): ana. to dairy, eggs, peanuts; asthma


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PostPosted: Sat May 19, 2007 11:51 am 
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Joined: Sun Oct 08, 2006 10:53 am
Posts: 207
Location: Winnipeg, MB
Like Karen, I'm trying to understand how a parent of a non-allergic child would cope with trying to follow these rules, when I as as a parent of an allergic child struggled every day with what to prepare for my child's lunch! What would I do if our school was to become dairy free and wheat free and soy free and. . . you get the point!

What I would push with the school is to have better supervision. Having 2 Grade 5 students monitor the children is not adequate supervision in my opinion. A child in grade 5 isn't legally allowed to babysit - why would they be allowed to supervise at school! The school should provide adult supervisors (teachers or others) who have first aid, CPR, child behaviour and allergy training. They should remain in the classroom where there are special needs students, including those with allergies, so that they can closely monitor the situation. I can't believe the divisioni even allows this level of supervision at your school - what school division are you in?

My son is anaphylactic to eggs, peanuts and most tree nuts. He's 15 now so we're in a different stage in managing his allergy, but in elemetary school we only asked for (and received) a peanut/treenut safe environment. A few ruffled feathers the first year from some select parents, but 10 years later the students he's gone to school with all these years are still his friends and no-one bats an eye at the restructions. In fact, he was golfing the other day with some buddies from school and their dads, and my husband heard one kid ask the snack cart lady, "got any chodolate bars with no nuts?" It's just part of their life now.

Getting back to the school thing, there were no division or school wide policies when we were in elelmentary - we were breaking new ground at every turn. We asked parents not to send food that contained peanuts or treenuts. Products that "may contain" or "made in a factory with" were allowed as the risk posed by these products with possible cross-contamination was and is acceptable to us for our son to be around - just not acceptable for him to consume. Despite my son having RAST scores for peanut of 100+ and egg and tree nut scores in the 5-10 range, he has never had an incident at school of any type. No ana, no hives, no respiratory issues - nothing. We thought the precautions we put in place would address our biggest fears and would still be managable for the other non-allergic students and I think we were right.

_________________
adult son allergic to peanuts, most tree nuts, eggs and penicillin.


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PostPosted: Sat May 19, 2007 1:25 pm 
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Joined: Thu May 17, 2007 11:24 pm
Posts: 8
Location: manitoba, canada
i do completely understand the parents. this allergy education night for the parents is the administrations idea. they fell that because the parents are not complying with the egg policy that is in place. which is not to send any primary eggs to school. i never asked for the school to make it egg free this is there desision to keep the two kids safe. my little girls allergy to egg is very bad. if she touchesit. eats it or even smells it cooking she has a severe reaction. our rast testing for egg is on a scale from .386 being allergic and 3.7 being extremlly allergic (needing epi.near death ECT.) she is a 13.8 the school understands her sensetivety. we do't have as much of a window of opportunity with her. we have almost lost her once from anaphylaxis. and this is a school desision and of course you do not get this with alot of schools this is unbaliveable for us.but i am not going to hold my breath. the school has told me it is not my fight anymore. they are taking over. i have never asked for completly egg free . I always just asked to minimize the risk.
we are in southwest horizon school divisionl
she is very aware of her allergies.she follows her rules at school.and she would never share or except food from anyone. she will not even take food from her aunt who is a nurse.
and thank goodness nothing has happened at school as of yet

_________________
7 yr old with food allergies. egg, treenut, shellfish,fish,cat and enviromental and penicillin. aswell as severe athsma & excema needs to carry 2 epi-pens
12 yr old athsma,seasonal allergies
hubby-athsma, anaphylaxis to bees and wasp


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PostPosted: Mon May 21, 2007 10:36 pm 
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Joined: Tue Nov 29, 2005 4:04 pm
Posts: 2044
Location: Gatineau, Quebec
It sounds like you are doing a lot of things right, and obviously you know that even if the school requests that people not send in foods containing eggs that there will still likely be some foods that contain eggs - either on purpose or by accident. So I would keep encouraging your daughter to do all the things she is doing to stay safe.

The one thing that I would really emphasize to everyone (including your daughter) is that even though things are supposed to be egg-free, she is never to be given food unless you have approved it or sent it.

In my opinion (and I'm sure you agree), almost no one but the parents truly know how vigilant you have to be about what goes into the mouth of their allergic child (with the exception maybe of the child him/herself). Even though there may be well-meaning people who make things that are "egg-free", can you trust that their kitchen is free from cross-contamination (via spoons, bowls, cookie sheets, or whatever)? If they are not an egg-free household, there is that risk as well.

So along with better adult supervision, I would stress that the rules for keeping your daughter safe stay the same - no sharing of anything, ever, without your approval ahead of time, handwashing for her before meals/snacks, etc.

Best of luck with all this. It's really challenging, I know.

K.

_________________
Karen, proud Mom of
- DS1 (12 yrs): allergic to cashews, pistachios, Brazil nuts, potatoes, some legumes, some fish, pumpkin seeds; OAS
- DS2 (1o yrs): ana. to dairy, eggs, peanuts; asthma


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PostPosted: Tue May 22, 2007 9:56 am 
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Joined: Mon Sep 11, 2006 1:13 am
Posts: 28
Location: Medicine Hat, Alberta
Well it really sounds as if the school is trying to help you out alot. You at least have that in my daughters school we have two grade 6 students watching over my daughters kindergarten class. There has been no banning or even safe zones for my daughter to eat. We have really had only a couple incidents all year but that is due more to the teachers vigilance than the schools. The first incident the parent didn't know not to bring it in and in the second one my daughters teacher sent a note home to please not bring in the chocolate covered cashews and almonds because of my daughters lta and the product was sent in a childs lunch anyway. My daughter is the one who realized the problem the second time and the teacher took it away as this is the first year of dealing with my daughters allergies and school all at the same time it is a learning process. I have realized my daughters teacher is her best support during school but the teacher is not in the lunch room. So far other than a couple of incidents that i told you about no major issues at the school. For banning outrite i believe that must be quite hard good luck with the allergy night i hope it helps people to understand about allergies.

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Daughter Ana to Cashews, Pistachios


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PostPosted: Tue May 22, 2007 10:47 am 
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Joined: Tue Nov 29, 2005 4:04 pm
Posts: 2044
Location: Gatineau, Quebec
Suzie - I would be curious to know where your school is getting their info from for their Allergy Night.

I realize it might be too late, but I would suggest that you point your school to this website: www.allergysafecommunities.ca - which is based on the national anaphylaxis guidelines, published in hard copy under the name of Anaphylaxis in Schools & Other Settings. It might be worth investing in the document for the school as well. Details about how to order it are on the website. All schools in Ontario were sent a copy but I realize up don't live in Ontario so your school may not be aware of it.

It's definitely worth reading and you can print out the pages for your school if you don't end up getting the paper copy.

The website (and document) has suggestions for how schools can try to reduce the risk for students at risk of anaphylaxis.

K.

_________________
Karen, proud Mom of
- DS1 (12 yrs): allergic to cashews, pistachios, Brazil nuts, potatoes, some legumes, some fish, pumpkin seeds; OAS
- DS2 (1o yrs): ana. to dairy, eggs, peanuts; asthma


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PostPosted: Tue May 22, 2007 11:47 am 
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Joined: Thu Mar 03, 2005 9:38 pm
Posts: 1643
Location: Toronto
Quote:
the school has told me it is not my fight anymore. they are taking over.


That's the way it should be. Parents can make requests -- but schools make the rules, and it's up to them to inform and enforce.

I have read many posts by people that with very good intentions tried to explain the situation to other parents, and things just got worse and worse.

The school handling it does NOT mean you don't need to be involved at all. You still have the right to contact them with questions, comments, suggestions. But, dealing with other parents is best left up to the school.

_________________
self: allergy to sesame seeds and peanuts
3 sons each with at least one of the following allergies: peniciilin, sulfa-based antibiotic, latex, insect bites/stings


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