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PostPosted: Fri Sep 22, 2006 12:33 pm 
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Joined: Sat Apr 01, 2006 1:02 am
Posts: 164
Location: Winnipeg
Hi all,

As some of you may have read in other parts of the forum, we're soon moving to Wpg. I'm just wondering if there's any support group there. If not, I will likely start one! Something I've learned in the LTFA journey thusfar is that support (online AND in-person) is critical.

thanks,
Marla

_________________
*Son, 5 years old: Asperger's, allergic to eggs, peanuts, and mustard seed (outgrew dairy and soy)
*Son, 23 months old
*Hubby: allergic to cats and trees (non-specified types)
*Self: allergic to penicillin


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PostPosted: Fri Sep 22, 2006 1:53 pm 
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Joined: Sat Mar 05, 2005 7:06 pm
Posts: 39
Location: Winnipeg, MB, canada
Hey marla!

There is one support group that I know of. Unfortantly it is not very active...as far as I know. I was also planning to start one. It is definitly needed. If you would like to tackle this together let me know :)

Shannon

_________________
Anaphylactic to; fowl, fish and tree nuts
Idiopathic Anaphylaxis


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 Post subject:
PostPosted: Sat Aug 16, 2008 11:11 am 
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Joined: Tue Jul 29, 2008 6:46 pm
Posts: 38
Location: Manitoba
Iwould be very interested in a support group although I live lorette, Winnipeg is not far for me. Is there a support group currently active in winnipeg?

_________________
Mother of two.
One year old with allergies to flax, dairy, eggs, wheat, barley, rye, oats, legumes, kiwi. Outgrew soy!
Four year old with a peanut allergy.


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 Post subject:
PostPosted: Tue Aug 19, 2008 12:36 pm 
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Joined: Tue Nov 29, 2005 4:04 pm
Posts: 2044
Location: Gatineau, Quebec
I don't know if there is... There isn't one affiliated with Anaphylaxis Canada, from what I can see of their list:

http://www.anaphylaxis.ca/content/progr ... t_list.asp

If you ever do want to start one yourself, you could contact Anaphylaxis Canada and get assistance from them.

K.

_________________
Karen, proud Mom of
- DS1 (12 yrs): allergic to cashews, pistachios, Brazil nuts, potatoes, some legumes, some fish, pumpkin seeds; OAS
- DS2 (1o yrs): ana. to dairy, eggs, peanuts; asthma


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 Post subject: From Wpg too..
PostPosted: Sat Sep 06, 2008 12:11 am 
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Joined: Mon Aug 25, 2008 9:04 pm
Posts: 11
Location: Winnipeg, MB
Hey there,
Did anything more come from this discussion? I'm also from Wpg and I'm not aware of related support groups in the city/surrounding area. I would be interested as well. I was even going to ask our Allergy Specialist (Dr. Jan Roberts) if there would be a way for me to post something up in the office to draw a few Mom's into considering something like this. Please let me know either way!

_________________
Mom-Jenn
2.5 yrs old son-allergic to eggs, milk, avoiding nuts for now, mold, mild asthma, fragrance intolerance.
Dad was allergic to yeast as a child and had asthma.
7 mth old son-no known allergies.


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 Post subject:
PostPosted: Sat Sep 06, 2008 2:58 pm 
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Site Admin

Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6429
Location: Ottawa
I'm sure there are enough of you expressing interest to warrant starting a group. As Karen said Anaphylaxis Canada can help you get started.

If you look at the bottom of a post, you can either send an e-mail or a private post to each other to make arrangements.

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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 Post subject:
PostPosted: Sat Sep 06, 2008 11:25 pm 
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Joined: Tue Jul 29, 2008 6:46 pm
Posts: 38
Location: Manitoba
Hey Jen, We have the same allergist!

_________________
Mother of two.
One year old with allergies to flax, dairy, eggs, wheat, barley, rye, oats, legumes, kiwi. Outgrew soy!
Four year old with a peanut allergy.


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 Post subject:
PostPosted: Sun Sep 07, 2008 7:02 pm 
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Joined: Sun Oct 08, 2006 10:53 am
Posts: 207
Location: Winnipeg, MB
There is a support group in Winnipeg - called MAIN - Manitoba Anaphylaxis Information Network. I've emailed the leader to see if it is still active and if she can come here and post info about upcoming meetings etc.

I'll update if I hear from her.
M

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adult son allergic to peanuts, most tree nuts, eggs and penicillin.


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PostPosted: Wed Sep 10, 2008 9:35 pm 
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Joined: Wed May 14, 2008 3:38 pm
Posts: 11
Location: Winnipeg
Manitoba Anaphylaxis Information Network (MAIN) is active in networking with Manitobans dealing with life threatening allergies.

I send out brochures inviting people to contact me for support and resources. I provide consultations over the phone or via email and send out packages of resources or direct people to resources.

Over the past year, I and a few other members have met with Ministers and Members of the Manitoba Legislative Assembly to discuss legislation to support people with LTA.
On April 29, 2008 legislation was introduced under the Child Care Safety Charter that would require all licensed child-care programs to have “policies to meet the needs of children who have diagnosed anaphylaxis.”
On May 12, 2008 Bill 232 – The Public Schools Amendment Act (Anaphylaxis Policies)
was introduced by Erin Selby, MLA for Southdale. This legislation would require all public schools to have policies to support students with LTA. Although this bill did not pass before the session ended in mid June it will be reintroduced in the fall session. It is expected to pass once it goes through the required steps.

In past years we have held regular support group meetings and social functions. We had many guest speakers and/or discussions covering a wide array of topics regarding LTA. Also, we sent out newsletters to members of MAIN.

There are a number of members who have expressed an interest in reestablishing our support group meetings and/or our newsletter if others are interested and willing to assist.
If you are interested please call me at 654-2676 or send an email to mainmanitoba@shaw.ca.

_________________
Nancy,
Manitoba Anaphylaxis Information Network
mainmanitoba@shaw.ca
Daughter 22 yrs allergies to peanuts,nuts,sunfower,sesame,banana,kiwi,soy,fish,seafood,mustard,mushrooms & horses, cold induced urticaria


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PostPosted: Mon Jan 12, 2009 5:54 pm 
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Joined: Wed May 14, 2008 3:38 pm
Posts: 11
Location: Winnipeg
January 2009


Greetings from Manitoba Anaphylaxis Information Network

I hope you and your family had an enjoyable and safe holiday season.

I am happy to inform you we will be holding support group meetings over the upcoming months.

On Tuesday Jan 27, 2009 from 7:00 – 8:30 pm we will hold an open support group meeting. This will be an opportunity for parents to exchange ideas and tips for coping with life threatening allergies. Through the sharing of experiences we can feel a sense of support and less like we are alone in facing the many challenges we are presented with.

On Tuesday Feb 24, 2009 from 7:00 – 8:30 pm we will have a guest speaker, Dr Michael Teschuk, a psychologist. He will give a presentation titled “Vigilance without Fear: Helping Children Cope with Life-Threatening Allergies” and be available to answer questions. Admission is free and all are welcome to attend.


Meetings will take place at The Gray Academy at 123 Doncaster Street (Room 110).

Enter the building through the main doors of the Asper Jewish Community Campus located at 123 Doncaster Street. Free visitor parking is located across the street from the doors. Upon entering you must check in with the security desk and provide identification.

The Gray Academy is located off Kenaston Blvd near Academy Road. For a map go to: http://www.grayacademy.ca/about_visitin ... tions.html


Call me with any questions.

Nancy Boni
Manitoba Anaphylaxis Information Network (MAIN)
mainmanitoba@shaw.ca
1-204-654-267

_________________
Nancy,
Manitoba Anaphylaxis Information Network
mainmanitoba@shaw.ca
Daughter 22 yrs allergies to peanuts,nuts,sunfower,sesame,banana,kiwi,soy,fish,seafood,mustard,mushrooms & horses, cold induced urticaria


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 Post subject:
PostPosted: Sat Jan 24, 2009 12:17 am 
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Joined: Sun Nov 30, 2008 11:00 am
Posts: 1115
MAIN was wonderful in answering my questions and sending me great information! (unfortunately the emails are on my now defunct computer so don't know if it was Nancy)

Unfortunately for me, the MAIN support meeting is on my family's crazy night - Tuesday - but maybe I can get help so I can attend :)

We go to Dr. Jan Roberts too :D She is marvellous. When my daughter had her anaphylactic reaction I called Dr. Roberts from emergency and she was on the line quickly and talked for a long time. It really helped a lot.

_________________
me: allergic to crustaceans plus environmental
teenager: allergic to hazelnuts, some other foods and environmental


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 Post subject: Playgroup
PostPosted: Sat Jan 24, 2009 2:32 pm 
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Joined: Tue Jul 29, 2008 6:46 pm
Posts: 38
Location: Manitoba
We have started a playgroup here in Winnipeg. If anyone is interested in joining please let me know.

Evelyne

_________________
Mother of two.
One year old with allergies to flax, dairy, eggs, wheat, barley, rye, oats, legumes, kiwi. Outgrew soy!
Four year old with a peanut allergy.


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 Post subject:
PostPosted: Tue Feb 24, 2009 9:36 am 
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Joined: Sun Nov 30, 2008 11:00 am
Posts: 1115
There is a meeting in Winnipeg tonight with a guest speaker at the Gray Academy - 7pm to 8:30pm.

It will be my first MAIN meeting :)

_________________
me: allergic to crustaceans plus environmental
teenager: allergic to hazelnuts, some other foods and environmental


Last edited by walooet on Wed Feb 25, 2009 8:23 am, edited 1 time in total.

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 Post subject:
PostPosted: Tue Feb 24, 2009 10:18 am 
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Site Admin

Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6429
Location: Ottawa
:) Glad you found them!

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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 Post subject:
PostPosted: Wed Feb 25, 2009 8:24 am 
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Joined: Sun Nov 30, 2008 11:00 am
Posts: 1115
:cry: I was unable to make it to the meeting last night. I would love to hear any tips or ideas from it...

_________________
me: allergic to crustaceans plus environmental
teenager: allergic to hazelnuts, some other foods and environmental


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