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 Post subject: new to milk allergy
PostPosted: Wed Feb 15, 2006 8:47 pm 
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Joined: Tue Feb 14, 2006 11:06 pm
Posts: 26
I have a daughter that has been diagnosed with a milk allergy, she is a failure to thrive, and also besides eating she has a feeding tube, anyways her allergist said that she was fine, and her gastro, and main doctor said she was allergic to milk, so what do i cut out of her diet? do I feed her food with casein and whey? my family thinks I am overeacting, but when you have a daughter that has gone through everything she has you would want to prevent anything if you can we did treat her for celiac diease for 8 months and she did good, everything was almost all milk/casein free............. please help me if you can thank you


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 Post subject:
PostPosted: Wed Feb 15, 2006 9:12 pm 
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Joined: Mon Feb 07, 2005 6:39 pm
Posts: 2948
Location: Toronto
Hi Sarahjo, Saw your posts up under Parenting as well - so sorry to hear about your daughter's struggles and your distress. There are a number of parents managing dairy allergies here, and I'm sure you'll get good advice from several.

In the meantime, let me mention a couple of resources:
1) Regarding a milk-free diet, the dietitians of the Hospital for Sick Children's Specialty Food Shop give free advice and can be called during working hours (ET) at 1-800-737-7976 or by e-mailing sfs@sickkids.ca

2) Alisa Bar-Dayan is one of the head dietitians at that shop. She writes a column for Allergic Living magazine, and did this article (though some of her diet advice will be geared to a slightly older child). http://www.sickkids.ca/sfsnutritionreso ... alcium.pdf

See also: http://www.sickkids.on.ca/SFSNutritionR ... &sID=14690

3) The Can. Food Inspection Agency has this link: http://www.inspection.gc.ca/english/fss ... aite.shtml They also have good brochures on specific allergens.

4) Check some of the links under the Links tab on this site (click the logo on this page to go back to the homepage and you'll see the tabs in the red bar). The CAIFF site, Anaphylaxis Canada and AAIA should have good info on milk allergies.

Best with it. Really hope your daughter feels better soon. /Gwen


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 Post subject:
PostPosted: Sun Feb 19, 2006 12:08 am 
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Joined: Tue Feb 07, 2006 2:30 pm
Posts: 28
Location: at my desk typing with you
I have a milk allergy and my allergist wanted me to still use cream in my coffee-just to have a tolerance-I use coffee mate and I stay away from everything else-on my 10 year anniversary of being diagnosed I was tested again and I still have this allergy-I was just hoping not to--its best to ask your allergist what they think is best


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 Post subject:
PostPosted: Sun Feb 19, 2006 10:45 am 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6490
Location: Ottawa
Shadow, you have an allergy to milk protien but your allergist told you to use cream in your coffee? Real cream? I'm having a hard time grasping the logic of this as cream is the fatty part of milk. :shock:
Every piece of information that I have read includes cream as a substance to be avoided when you have a milk allergy. I would strongly suggest that you contact your allergist to clairify what you are allergic to and what you should be avoiding.
You state that you use coffee-mate in your coffee. Coffee-mate is dairy-free, although the Coffee-mate Latte Creations and Half and Half products both contain milk and lactose.
Here is the website FAQs
http://www.coffee-mate.com/faq.asp#6.


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 Post subject:
PostPosted: Sun Feb 19, 2006 12:19 pm 
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Joined: Thu Sep 22, 2005 11:39 pm
Posts: 1141
Location: saskatchewan, canada
Coffee mate contains sodium casienate, a milk derivative. It was on the list of ingredients to avoid from my allergist. On the coffee mate site, it says it has been altered, blah, blah, blah, and is free of lactose...but says nothing about casien (milk protien ) that its name alone would imply that it contains casien. A lot of the time I find companies call things lactose free, and assume that if it is free of lactose them it must be fine for those who have a milk allergy, assuming that lactose intolerance and milk allergy are the same...which we all know they are very different. I use silk for coffee.


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 Post subject:
PostPosted: Thu Feb 23, 2006 11:42 am 
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Joined: Tue Feb 07, 2006 2:30 pm
Posts: 28
Location: at my desk typing with you
my allergist felt its better to keep some in my system- she felt having some tolerance was better-my health is overall better-my asthma and lungs have improved tremendously-migraines are minimal


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 Post subject:
PostPosted: Thu Feb 23, 2006 1:51 pm 
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Joined: Thu Sep 22, 2005 11:39 pm
Posts: 1141
Location: saskatchewan, canada
According to my allergist, and everything I have ever heard or read about milk allergy you must avoid all sources, and all traces. In a child your only hopes of outgrowing it are complete avoidance, even if your child seems okay with some milk derivatives, you still need to avoid ALL milk derived substances so that their system is not constantly being exposed, and re-sensitized. Including some milk, even in small amounts, or in various forms does not encourage outgrowing the allergy...it encourages the allergy to become more severe.

Shadow, maybe the advise given to you by your allergist contracticts this, and differs for you because you are an adult who may be unlikely to outgrow your allergy, I don't know why your allergist would say cream is fine, but being new to milk allergy like sarahjo is, if we want to help her learn how to live "milk free" we must support the information on strict milk avoidance that is promoted for milk allergic children by allergy specialists.


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 Post subject:
PostPosted: Mon Feb 27, 2006 10:52 pm 
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Joined: Mon Feb 27, 2006 12:37 pm
Posts: 96
You should avoid all dairy if you are allergic to it. There is no such thing as "building a tolerance" to a food allergy, because your body already has TOO much of a toelrance to the food. The more often you are exposed to a substance the bigger chance you have of having an allergic reaction to it. You must undersand how an allergy works in order to understand this. PLEASE do not give your child any dairy. DOn't listen to the previous poster who uses some dairy. There longer your child stays away from all dairy products the likely it is she will outgrow the allergy, or at least have a less severe reaction if she is accidentally exposed to it.

_________________
2 year old son: allergic to milk--waiting to introduce other allergens

self: allergic to milk, eggs, soy and other legumes, corn, oats, wheat, turkey, tree nuts, yeast, fish


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 Post subject:
PostPosted: Tue Feb 28, 2006 2:44 pm 
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Joined: Tue Feb 07, 2006 2:30 pm
Posts: 28
Location: at my desk typing with you
come on you guys, I didn't say to her to give her child milk-I said to talk to her allergist before she did anything--


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 Post subject:
PostPosted: Tue Feb 28, 2006 9:12 pm 
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Joined: Tue Feb 14, 2006 11:06 pm
Posts: 26
I have been trying to avoid all milk products, but she is still the same but i am having one heck of a time getting replies from companies about their ingredients, like kellogs about their poptarts, and lunchmeats, chips, any advice, I have a list of what to avoid, but I just have a feelilng I am still feeding her the wrong of something, she has been a clartin for about a week for enviromental allergies and nothing,,,,I don't if its the allergies or just winter illnesses?

thank you for helping me, I know everyone is just trying to help, I have heard to feed her milk(for some it does work), but for know I want to avoid milk 100% if I could fiqure out how, we even work with 2 dietitions, her ped, a gastro, and a speech therapist and I still have questions

thank you


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 Post subject:
PostPosted: Tue Feb 28, 2006 9:47 pm 
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Joined: Fri Jan 06, 2006 8:22 pm
Posts: 154
Location: Georgia
sarajo

What are they giving her in the feeding tube?

As far as the Pop-Tarts, chips, etc... stick with foods you fix yourself or very simple packaged foods for now. At least until everything is sorted out. The fewer the ingredients, the easier it is to identify the cause of reactions. (Some children are allergic to more than one thing, especially if this has taken awhile to diagnose.)

For example, with my allergies (not milk) I like Fritos, Triscuits, etc... because they only have about 3 ingredients. Much easier to read the label, too. And items like a simple piece of grilled or baked meat or chicken. Just salt and pepper. Plain baked potato or oven-roasted fries. (Great with just a little cooking oil and salt.) Try to avoid all the sauces, marinades and such. You can add them back in when things are more in control.

Good luck and keep us posted,
Daisy


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 Post subject:
PostPosted: Tue Feb 28, 2006 10:24 pm 
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Joined: Tue Feb 14, 2006 11:06 pm
Posts: 26
She recieves Nutramigan, and peptin Jr, they have hydrolyzed whey protien,casein hydolysate in them but all the diet, ped, and gastro, have explained to me that the process of these 2 products depletes the milk? They do recommend the nutramigan for children with milk allergies, I asked every doctor I could think of, and also read it on the internet, I have been trying to stick to basic foods this week , she doesn't want to eat and my fear is that she will lose weight. she usually dehydrates after hours if not feeling well ( she has been hosp. 3 times for it and never showed a sign) if she loses weight we run into a lot of problems, she wants what the other kids are eating, and i baked from scratch and switched the products for milk free ones, that helped, but I just don't want anything else to happen,


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 Post subject:
PostPosted: Tue Feb 28, 2006 10:27 pm 
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Joined: Wed Aug 10, 2005 11:21 am
Posts: 687
Location: Cobourg, ON
Sarahjo,
I am not sure what you use for lunch meats but I haven't found any packaged meats that are safe for my daughter (peanuts, milk, egg allergy). Maybe someone else has? Deli meats are not safe too because there is risk of cross contamination with milk ingredients when meats and cheeses are cut on the same slicer. Maple leaf top dog all beef weiners are safe - not very nutritious but a treat every so often for us. For lunch meats I cook fresh turkeys, chickens or hams and slice them up and freeze them in small packages to use for lunches. We generally eat foods with few ingredients also. Lots of fresh fruit, vegetables and fresh meats. We definitely eat very healthy now.


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 Post subject:
PostPosted: Tue Feb 28, 2006 11:10 pm 
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Joined: Fri Jan 06, 2006 8:22 pm
Posts: 154
Location: Georgia
sarahjo

How about Popsicles to prevent dehydration. Just the juice ones. And a little Sprite w/ lots of ice won't hurt either, in a pinch. Have to do what you have to do!

I know what you mean about the not-eating...my niece would just stop eating if you didn't give her what she was wanted to eat. Very stubborn. People would say to my sister-in-law, "Just take away her food and make her have only what you're having . She'll eat when she gets hungry." (My sister-in-law could have won a lot of money on those bets! I'm sure she can put it to her advantage when she's older.)

Where is she seeing other kids eating? Home or school?

You are doing a great job as a Mom. Keep it up and don't get discouraged!


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 Post subject:
PostPosted: Wed Mar 01, 2006 12:33 am 
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Joined: Thu Sep 22, 2005 11:39 pm
Posts: 1141
Location: saskatchewan, canada
My daughter eats pretty basic foods, fresh fruits and veggies, canned peaches, canned beans, cheerios, life cereal, rice krispies, air popped popcorn, plain pasta, plain rice, arrowroot cookies, plain ritz crackers (not minis, not sandwhiches). Also "fruit to go" bars, and nonuttin granola bars. My friends 2 year old milk/egg allergic son is the most picky child ever. My friend ordered some nonuttin bars with me, and her son absolutely loves the apple cinnamon. My oldest daughter loves the choc. chip. Nonuttin bars might be a good, easy, safe enjoyable snack for your daughter.

You can request a free sample, mine arrived in just a few days. They sent me one of each flavor, so you could see which ones she likes before ordering any. I ordered 2 cases to split with my friend, they arrived quite quickly as well.

http://www.nonuttin.com/imscart/index.p ... c2cb8089d0


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