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PostPosted: Thu Dec 21, 2006 10:58 pm 
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Joined: Thu Dec 21, 2006 10:10 pm
Posts: 2
Location: central PA
First of all, thank you for sharing your experiences.

I am very new to this whole allergy scene. I have occasional, as in not every year, seasonal allergies. My husband also only has seasonal allergies.

My son is 10 months old. In recent weeks, we have discovered he has a dairy contact allergy. We have been trying to introduce food since he was 6 months old. He is still refusing everything except breast milk. I would love to breastfeed him as long as it takes for him to be willing/able to eat food, but I am 11 weeks pregnant and my milk supply is dwindling. My son has lost almost 2 pounds in the past 4 weeks, which scares me to death. We have been trying everything: rice cereal, bananas, avacado, sweet potato, mashed potato, squash, applesauce, chicken, roast beef, bread, puffed rice, french fries, and goat's milk. He has refused everything. He had the same reaction to goat milk that he has to cow milk.

Did anyone else have difficulty getting their kids to eat? What did you do? Does anyone have any suggestions?


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PostPosted: Fri Dec 22, 2006 9:15 pm 
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Joined: Wed Aug 10, 2005 11:21 am
Posts: 687
Location: Cobourg, ON
Welcome! Do you have an allergist? It is not too soon to do testing. Perhaps your child is reacting to multiple foods and as a result is turning away from all foods. It would be good to get expert advice. With a diagnosis you can turn to a dietician too.

Anyways, we had a hard time getting my daughter to try new foods too as an infant and weaning was difficult. We tried a lot of things to get her to take other liquids than breastmilk. Finally she started taking a little juice from a sippy cup at 9 months. We just skipped the bottle entirely. Then by 12 months we got her to take soy formula. At first we mixed it with breastmilk so that the taste was somewhat familiar. I think we watered it down too. Eventually we added less breastmilk and more formula until she took all formula.

Are you making your own baby food? What does your baby do when you offer food? Is there any reaction to these other foods? Have you tried any fruits? Maybe a sweet taste might interest your child in food. I know that sweets should usually wait but .... Check your labels carefully. Some rice cereals contain milk. Our allergist told us that people with milk allergy will also react to goat's milk.
Just some quick ideas. Good luck.
Kate

_________________
13 year old daughter -- lives with life-threatening allergies to milk, tree nuts and peanuts; seasonal allergies (birch, maple, ragweed); pet allergies; asthma; and eczema
10 year old son - no allergies


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PostPosted: Sat Dec 23, 2006 8:09 am 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6456
Location: Ottawa
You might what to get your baby checked out by a speech and language pathologist to rule out any swallowing disorder. (or maybe just discuss this with your baby's Dr)
Do you place it on the tray in front of baby and let him try to feed himself? Does he appear interested in eating at all? Can you express some milk and mix it with the pablum? He might like it if it smells like breast milk. Also try the food before you offer the breast and when he's most hungry and awake.
Lol, you've probably done all of this!
A lot of babies slow their growth around the year mark due to increased activity.
Does your baby appear healthy in all other respects?
Have you tried Nutrios? They were dairy free when we used them.
Contact your local La Leche League for info regarding breast feeding and pregnancy. I'm surprised your milk supply is dwindling.
Look after yourself, that is the most important thing right now.

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Sat Dec 23, 2006 1:21 pm 
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Joined: Thu Dec 21, 2006 10:10 pm
Posts: 2
Location: central PA
Thanks Kate and Susan,

I have been in almost daily contact with one of my best friends who is our local La Leche League leader and Bradley Natural Childbirth teacher. She has tons of experience but we are at our wits end. I have been drinking 75 -100 ounces of water per day plus 100% juice, and several glasses Mother's milk tea every day. I am also taking Fenugreek extract several times per day. I am also eating 100-120 grams of protein per day. All to try to increase my milk supply.

We do not have an allergist, as this is all very new to us in the last several weeks. My son has actually never seen a physician. Traditional western style medicine has not been part of my life for several years and has never been part of my husband's life. My husband has only ever been to the doctor for a physical for a job! I work in the medical model as a physical therapist and have developed a distrust of the system. In other words, we are starting from ground zero and need to find a family doctor and a specialist. I have some ideas in the area, but it is going to be especially challenging.

I have considered talking to a speech pathologist and have the name of someone locally who is the friend of a friend and specializes in children. It is challenging time of year with Christmas only a few days away and everyone very busy.

As far as foods, we have put food on a tray for him. He will touch it but does not put it in his mouth. He will occasionally let me put something to his lips but not in his mouth willingly. We have tried banana and apple both pureed and chunks. He does not even want to touch the banana chunks, something against the texture. His reaction to almost any food that is put to his lips is to turn away, close his mouth and cry if we persist. Anything that we manage to get in his mouth, other than breast milk, is to gag, choke, and dry heave. He has no problem when nursing with gaging or choking. He seems to want the food we are eating, until we offer it to him. He reaches for our plates, cups, utensils. He watches us while we chew. He may have reacted to puffed rice the other night, but we are not sure. He has reacted to wet polyester previously, and of course had on a partial polyester shirt and was drooling a lot. His chin and neck were red and some hives, but only where wet and in contact with his shirt. Not sure what the reaction was to.

I have made all of the food we have given him except rice cereal, which I have only tried out of desperation to get him to eat something and stop losing weight. I even bought teether bisquits yesterday, which are wheat, dairy and egg-free, out of desperation. We belonged to a community organic farm over the summer, so I chopped up and froze a bunch of stuff. The other things I have bought organic. I have tried mixing breastmilk with several different foods. He rejects those with more vigor than if plain. I think he gets mad that his breastmilk has been distorted.

I know the most common substitute for dairy is soy, but from everything that I have read about the negatives of soy, we will not even try it. A friend just suggested rice milk, which I will have to look into and may consider as a supplement, that is if he doesn't react to it.

My son is generally healthy and happy. He has been a little cranky the past month, which is understandable since he is hungry, but has also cut 4 teeth in the same time frame. He mostly content. If I had not noticed the weight loss by weighing him, I don't think he would have given me any other indication. He was only nursing 4-5 times per day and was not asking to nurse any more often. Now I nurse him every 2-3 hours, which he gladly takes, but is not necessarily asking for. He is not crawling yet, but will get up on hands and knees and rock and scoots backward. He has been able to support his own weight since about 5 months old, with assistance only for balance. He is ahead of normal with fine motor skills, pinching and individual finger movements.

What are Nutrios?

julie


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PostPosted: Sun Dec 24, 2006 6:49 am 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6456
Location: Ottawa
Nutrios are similar to Cheerios but with extra vitamins and iron.
http://www.heinzbaby.com/english/produc ... foods.html
I hope you can find something that works. Maybe now that he's finished cutting those teeth...?
I understand the mistrust of the medical community but it isn't 100% bad and having knowledge and being wary allows you to make use of what you need while being cautious of it's pitfalls.
Good luck!

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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 Post subject:
PostPosted: Sat Feb 24, 2007 9:13 pm 
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Joined: Sat Feb 24, 2007 9:00 pm
Posts: 24
Location: outside KW, Ontario
My daughter was contact to dairy and egg but has outgrown the contact part. But we are still allergic. She outgrew the contact between 12month and 15months.

Taylor

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Mladyfred


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 Post subject: Contact allergies
PostPosted: Wed Jun 20, 2007 8:15 pm 
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Joined: Tue Jan 10, 2006 9:25 pm
Posts: 238
Location: Thornhill
Really? Someone has outgrown contact? I have now crossed my fingers very hard!!! Our daughter, like the preceding posts is contact allergic as well and it's terrifying.
A milk splash on her jeans (she was immediately changed & cleaned) resulted in asthma and vomiting as well as the usual hives, irritability etc.
Hives are such a frequent occurance in our lives. For those with young kids, two things to give some hope:
1) non-verbal stage doesn't last forever and the day does come when they can TELL you and use their own reason
2) we used baby signing (not for everyone I know) and it was great for us. One of the things our daughter signed was "hurt" - a great one when you don't know if you are dealing with allergic irritability or simply an over-tired child (until the allergies manifest and can't be mistaken)


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PostPosted: Wed Jun 20, 2007 9:22 pm 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6456
Location: Ottawa
...and for those who are verbal...
How a Child Might Describe a Reaction
Children have unique ways of describing their experiences and perceptions, including allergic reactions. Precious time is lost when adults do not immediately recognize that a reaction is occurring or don't understand what the children might be telling them.

http://www.foodallergy.org/school.html#

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Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Tue Jun 03, 2008 11:01 pm 
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Joined: Tue Jun 03, 2008 9:08 pm
Posts: 41
Hi there,

I know this thread is from along time ago but I'm new on here, just posted on the welcome mat, and this thread has a lot of other people with similar situations. It was nice to see that we aren't alone with our son's severe diary (and sesame seed) allergies (which extends to contact with even the smallest trace amounts).

It is the contact issue that is most problematic for us. We too have banned all diary and sesame seed products from entering our home, its the only way to keep him safe and provide him the only worry free zone. It's the balance of trying to give him a normal life by taking him outside of our home. We always carry his Epi-pens with us and benedryl (which he ends up getting way to often despite our best efforts).

We have known about his allergies since he was just 6 months, so he has never yet ingested any dairy at all (allergist testing confirmed very severe though and we know from the contact issue that it is as well). We are scared about what will happen to him should he find a piece of cheese on the floor when he's out somewhere trying to have a normal life, or one of the parents when I'm not looking gives him a goldfish snack or something with dairy which from what I can see so far is in everything and everyone around always seems to be consuming some sort of dairy product.

So what do all you other parents do? How do you go to birthday parties or do you? What do you say to the parents that don't want your dairy allergic child in their kid's play class with them (which happened to us today)? We also had to leave another toddler play class last week when one of the mom's (knowing about Zachary's allergy as he had a bad reaction in a previous class again just from contact) brings in cupcakes for everyone... we left, it was the only thing to do as it was a reciepe for danger for Zachary being around it, which made me so sad. He doesn't understand yet why he has to sit by himself for snack time, or why people don't want him in their classes. What do you do to get people to understand? We can't really play at anyone else's house either as every time we have tried to bring him to a friends house for a playdate, it results in an unhappy, puffy faced with hives toddler who has to have a dose of benedryl and go home. Thankfully no epi-pen use yet from his contact reactions, but I don't even know can that happen? Has anyone had their severely allergic dairy allergy child worsen so that contact with dairy results in epi-pen use?

We want to start Zachary in Nursery school, just 2 days for 2 hours a week in the Fall but i'm nervous about it all. I don't know if anywhere will take him yet. We have one really nice place that said they would try to accomodate him, we are going to meet with this later this week to discuss it more. They only have a small snack there which usually is just apples, or dry ceral... but sometimes is something else which then he could be there for. Also, we can't guarantee that the kids coming in don't have dairy on their hands from their time at home. Do I have the right to ask that the kids have their hands washed when they get there? How do the schools deal with contact dairy allergies?

Sorry for all the babble, we are really desperate to hear more from other people like us. We have had a real lack of compassion so far from people about Zachary's allergies, you would think that we were from Mars or something the way people are about it. How do you get the message across about the severity? Anyways, would love to hear from any of you who have been through this too.

Thanks so much! :)

Jodi (Zachary's Mom) :)


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PostPosted: Wed Jun 04, 2008 1:33 pm 
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Joined: Fri Apr 06, 2007 9:01 pm
Posts: 69
Location: Ontario, Canada
Hi and welcome Jodi!

My youngest son has egg and dairy allergies too. He was diagnosed at 13 months (almost 2 years ago) but I had suspicions by the time he was 4 months old. As with others in the earlier post, the allergist assured me that my son's allergies are not that severe (based on skin prick testing) but again I have suspicions that they are more severe than the doctor thought. He has never been exposed to pure egg and only very small amounts of milk.

I guess I have been very fortunate that our family and friends have been supportive of our efforts to keep him safe. I am not afraid to tell some one that he cannot share a snack because of his food allergies. I have tried to teach him that he cannot eat unsafe foods and I have tried to explain who can give him safe foods with the understanding that this is difficult for an almost 3 year old to comprehend. His older brothers (6 & 4) and his cousins (8 & 6) are with him most days at home or daycare (my sister is our care provider) are well versed in his allergies and trust me, don't hesitate to tell people about them.

Birthday parties are just starting to be a concern for us. I have made cupcakes for a friends' daughter's birthday and sent a single serving of safe cake for other parties. On the advice of the ladies here I even took an entire meal to a wedding reception recently.

We have another year before I tackle the whole school thing but I will be taking him to the allergist again before that time just to see where things stand.

I am certain there are others here with more helpful information but know that you are not alone.

_________________
Jan, mom to 3 boys
DS#3 - eggs, cats, dust, eczema, avoiding nuts as a precaution
DS#2 - seasonal allergies
DS#1 - no allergies
Me & DH - seasonal allergies


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PostPosted: Wed Jun 04, 2008 8:05 pm 
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Joined: Wed Aug 10, 2005 11:21 am
Posts: 687
Location: Cobourg, ON
My daughter was very reactive as a toddler. This has since improved a great deal. We have had any contact reactions pretty much since she was 4. We put her in a nursery school at 2. It was difficult to take that leap of faith but the teachers were incredible. They only had a small snack during that time too and they made sure that it was diary,egg and nut free. The teachers did ask the students to wash their hands prior to coming to school. It is not a big deal. I am so glad we put her in the program. She had a wonderful experience socializing and I was able to trust someone else with her care. I reviewed the epipen with them of course also.

Schools can deal with contact allergies too. There are ways to cope. Take one step at a time though.

_________________
13 year old daughter -- lives with life-threatening allergies to milk, tree nuts and peanuts; seasonal allergies (birch, maple, ragweed); pet allergies; asthma; and eczema
10 year old son - no allergies


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PostPosted: Wed Jun 04, 2008 9:36 pm 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6456
Location: Ottawa
So what do all you other parents do? How do you go to birthday parties or do you? What do you say to the parents that don't want your dairy allergic child in their kid's play class with them (which happened to us today)? How sad, would they feel that same way about a diabetic child? What about a blind child? I would speak to the person who runs the play group. Are the children eating? Are you present?

We had some problems with contact reactions when our daughter was very small. I took her to play groups, parks, pools and to library story times. You might want to invite others to your house for the first few playdates. That way you can control the allergens. Once they see you as the wonderful person you and your son are, they will naturally want to be around you. :)

We got around a lot of it by carrying wet wipes, bringing our own snacks and quietly educating those we wanted to establish relationships with while distancing ourselves from those who simply wouldn't listen.

Bring an old recieving blanket/beach towel to put under your son. Dress him in pants and long sleeves weather permitting to avoid contact. Offer to host a toy washing day and suggest implementing a new rule of snacks being served at a specific time in a separate area.

Bring wipes to clean the table and his hands prior to eating. Have the children wash before going back to play or have the staff offer them wipes upon entering the play area.

Kids are great, they want to help keep their friend safe.
Teach your son what is dangerous just as you would teach him not to touch a hot stove. Teach him to only accept food from you or his father. Give him the words to keep him safe. Playing kitchen, tea party etc is a great way to do this.

Make suggestions for healthy snacks such as fruit. Have a safe treat for him just in case.

At birthdays I invite myself along when I RSVP. I use my digital camera to make a disk of pictures for the parent as a thank you.

Carry a trainer, you will find that others become interested in how you manage and you will have opportunities to educate others. Insist that those who say they know what to do actually show you (with the trainer) before you ever leave your son with them.

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Wed Jun 04, 2008 11:23 pm 
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Joined: Tue Jun 03, 2008 9:08 pm
Posts: 41
Thank you everyone for your insight and experiences, so much appreciated! I love the insight so incredibly helpful and makes me feel more optimistic.

We joined a new playclass that doesn't have a snack component, and I'm there, however when I walked into the small class of complete strangers, who didn't even know Zachary was in their class, they were talking about how they heard about the kid with the dairy allergy and how they were not being able to have dairy around when he's around (I guess from the cupcakes the other week in the other music class, but everyone ate them, we just had to leave as it wasn't safe for Zachary as he has contact issues as well). Anyways, in this new class one of the mom's was upset about this kid... which is when I informed here that that was my son she was talking about. She did not seem happy about us being in her class. I understand that they don't like having to deal with allergic children, its hard, I know. I tried to explain that I joined this class because there was no snack component, and tried to explain about Zachary's allergies and the severity that it was like peanuts but dairy (and sesame) but I don't think they understand or believe me and were just annoyed. It was very difficult, I held back from crying cause it felt as if my son was being rejected before he they even knew us. I'm new to this still so very unprepared and trying to learn what to do in these situations. We'll be going back to the class only two left (short session) as my son loves it, but I won't be signing up again for it. I just hope we find more compassion and support then heartache as we continue to venture out!

We've got two birthday parties this coming weekend which I'm very nervous about (which is sad as it should be a fun time but I just feel worried about Zachary and if he'll be okay). I'll be there with him the whole time but I know there will probably be cheese or cake or some sort of allergic foods served which will get all over the kiddies hands and then its hard to keep Zachary free from a reaction. Both parties know about Zachary's allergies but neither can accomdate making all the food safe of course as its their party and they all are fine with dairy. We most likely be leaving when the food comes out (hopefully we can be there that long, as sometimes he's been at a home where the kids eat diary and its only a few minutes before he starts reacting, hence why its hard for us have playdates not at our home). One of the parties is outdoors so that will help as Zachary can run around away from food trays. Anyways, I'm sure your all very familiar with this situation too!

Susan, I love hearing about your love of wipes, as we are the same! When we are out, I do wipe his hands very frequently and everything around us like crazy too. We have these little disposable placemats that we use which have been helpful and I have a cooler bag and take his safe food with us anywhere we go.

It's great to hear about the success Katec you had with your little one at nursery school. We're meeting with a potential nursery school on Friday. I want to go prepared now with options that maybe they could implement for Zachary's class, so they don't feel the same lack of control about it we've been feeling. Hopefully we'll find a place for him that works.

All of your posts and insights are so welcomed, it really is great to see that there is support out there! I'm really enjoying this forum, its so great! :)

Cheers,


Jodi


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PostPosted: Mon Jun 09, 2008 7:20 am 
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Joined: Mon Apr 09, 2007 3:29 pm
Posts: 192
Location: Ohio
My DD who is 15 tested negative for milk allergy but that was 2 years ago. We knew when we took her she was ana- to milk and its products. The allergist told us we were crazy and she wasn't. We went to another allergest and he did a rast test. that was neg. She has not been back to an allergist yet. We know that she is ana to milk I have watched her face and turn red. She used to not get hives but now she does.

_________________
Karen in Ohio mom of 7
Allergic to tons and tons of food as well as perfumes, scented air sprays and cleaners. Hubby to Fish, ds #2 Shellfish, youngest to Eggplant, potato, Caesin, Raw Tomato & spinach.


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