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PostPosted: Sun Sep 07, 2008 5:28 pm 
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Joined: Mon Oct 29, 2007 11:56 am
Posts: 120
Location: UK
http://www.alexcurtistrust.org/

this trust was set up in the UK, st albans, hertfordshire, following the sudden death of alex curtis from a sudden acute asthma attack aged 17, by his family and school ( nicholas breakspear)

The trust is looking for individuals who are able to help raise awareness of asthma and allergies ( Alex had food allergies) in schools , as well as support fundraising.

I hope that uk lurkers might see this, and spread the word.
As well as posting a site that supports those with asthma and allergies.

I am one of the volunteers.

thanks,.
sarah


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PostPosted: Sat Sep 27, 2008 10:17 am 
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Joined: Sat Oct 01, 2005 8:55 pm
Posts: 412
Location: Vancouver, BC
What a sad story...poor kid and family :cry: :cry: :cry


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PostPosted: Sun Sep 28, 2008 9:46 am 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6479
Location: Ottawa
What a shame, he was so full of life.

I love the grad photos, he seemed so happy and his exzema seemed well under control (which for a teen would be a huge deal).

This story leaves me with two thoughts:

1. How vulnerable our teens are simply because they are teens. They feel invincible, they want to assimiliate with their peers, distance themselves from their parents, they are implusive and when they do try to advocate for themselves, people don't always take them seriously.

2. The medical profession let down this young man and his family. Through out Alex's entire story not once was he tested for the foods they suspected him being allergic to. I can only assume that he had no autoinjector. The world was robbed of Alex's potential and I hope that this trust can bring about some changes soon.

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Fri Mar 05, 2010 11:50 am 
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Joined: Mon Oct 29, 2007 11:56 am
Posts: 120
Location: UK
hi,
went on radio today to promote the event,

www.bbc.co.uk/threecounties

was with the lorna milton afternoon show, but hosted by a nice chap called gareth. i am the 2nd guest on the show after 2pm.


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PostPosted: Fri Mar 05, 2010 2:59 pm 
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Joined: Mon Oct 29, 2007 11:56 am
Posts: 120
Location: UK
really happy as radio was really good!

think i got most stuff across, always think of something else once i leave!


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