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PostPosted: Mon Nov 23, 2009 10:59 pm 
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Joined: Fri Nov 13, 2009 5:54 pm
Posts: 7
Location: London, ON
Thanks to recommendations and a lot of insistence, I've been able to get my son's pediatrician to refer him to Dr. Waserman. Hooray! However, when I called to make sure they got the referral (I left a message, and wanted to check up on my "lovely" pediatrician), I got a call back saying that they did. Hooray, again! However! There's always a however, isn't there? The doctor's office is scheduling currently well into 2010, and we're looking at approximately March or April before he will be seen. So the next four or five months, we're on our own. This is fine, and I'm sure fairly normal, but... This past week, we've had three separate reactions to dairy products, and while none of them have seemed too severe (hives, congestion, hair pulling, sticky poops, gas, behaviour changes), I would like to try to make sure he's not so uncomfortable while we're waiting. I'm hoping that when booking the appointment, they're able to offer some coping tools for the interim, but I suspect that won't be the case.

And so, here I am. While we wait to see the allergist, is there anything I can be doing for my Little Prince to make sure that he's as comfortable as possible, even if he has been inadvertently exposed to dairy? The pharmacist tells me that childrens' Benadryl, Reactine and Allegra are out, as he's 15 months (16 months on the 8th - Already?), and so I have no clue what we can do for him. If you have any suggestions, please let me know? I'm already clamping down on dairy, potential dairy and now on people eating dairy then touching him, but... What can I do if he gets into something?

_________________
I am Care. Mama to Little Prince (08/08/08), wife to Skeeve (06/03/06)

Dairy free since 09/09/09

Skeeve is reactive to milk proteins.
Little Prince takes after his daddy.
Mama bear is reaction-free.


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PostPosted: Tue Nov 24, 2009 9:58 am 
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Joined: Tue Oct 06, 2009 11:08 am
Posts: 78
Location: Halifax
If your son is experiencing hives and congestion then I would think that would be serious enough to move you to the top of the list. What may appear as congestion to you, could actually be swelling in the sinuses and nose area. Swelling is serious when it comes to allergic reactions. Every child is different but my daughter's reaction to milk typically starts off with hives and repetitive sneezing and runny nose before it turns to face swelling and vomiting. Specialists, including allergists, often sort their lists based on who needs care the most. I know that it often takes five to six months to see an allergist here in Halifax, but when my daughter exhibited severe symptoms, we were in there within a few weeks, and sure enough we found out she was anaphylactic to not only milk, but eggs and peanuts as well. I am thankful that we did not have to find out about those other ones by accident. I would speak to your doctor again and mention that you have had three separate reactions to dairy in one week. The doctor should be able to indicate on the referral that this is a possible life threatening allergy and so testing should be done fairly quickly. This is what happened in our case. Our pediatrician indicated on her referral that this was a serious case of food allergy.

I hope this helps. In the meantime keep clamping down on dairy to keep him safe.

Noha

_________________
Daughter: ana to milk, eggs, peanuts, allergy to pet dander, asthma, eczema
Husband: ana to aspartame, shellfish, allergy to pet dander, eczema
Myself: asthma
http://www.allergymom.ca


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PostPosted: Tue Nov 24, 2009 10:17 am 
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Joined: Wed Aug 10, 2005 11:21 am
Posts: 687
Location: Cobourg, ON
Could you get a prescription for an epipen from your GP while you wait for testing? It is obvious from his reactions that he is allergic to something. At least you would have something to use in the case of a more severe reaction.
Also I know that we used Children's Benadryl for my daughter when she was very young. We ended up at CHEO in Ottawa and the pediatrician we saw gave us the doseage for our daughter who at the time was less than a year. She was a big baby so maybe that was a factor in being able to use it but you might want to double check with your doctor about Benadryl.
While you wait you can just educate yourself about allergies as much as possible. You will get some information from the allergist but most of the information you need will come from your own research.
Good luck.
Kate

_________________
13 year old daughter -- lives with life-threatening allergies to milk, tree nuts and peanuts; seasonal allergies (birch, maple, ragweed); pet allergies; asthma; and eczema
10 year old son - no allergies


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PostPosted: Tue Nov 24, 2009 10:30 am 
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Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6476
Location: Ottawa
You can ask to be placed on the cancellation list atthe allergists office so that you are called if someone cancels their appointment. This can move you along quickly.

You may want to go through your cupboards and set aside anything that might have been cross contaminated with dairy (that jam that someone use the butter knife in). Also, set aside anything with ingredients purchased from a bulk food bin. If you find that the dairy is not a serious issue, you can rethink introducing these items but meanwhile simply replace them.

_________________
Moderator
Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: allergies to some tree that flowers in May
Cat: allergic to beef, pork and lamb


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PostPosted: Tue Nov 24, 2009 2:49 pm 
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Joined: Fri Oct 02, 2009 8:06 pm
Posts: 217
Location: Terrebonne, Quebec
I would also speak to your pediatrician about the Benadryl. My daughter has been getting doses of Benadryl since she was 4 months old, though I was reluctant to do so at first, it makes her so much more comfortable during minor and more major reactions. Also i'd ask about the dose for your childs weight, because while the bottle indicates that my daughter should b4e getting only 1ml (I think) our doctor has given me the liberty of selecting a dose depending on her reaction. She is now 12 months old and 22 pounds and is allowed to go up to a maximum of 8ml of liquid benadryl for a more serious reaction though most of the time a contact allergy just calls for a 2ml and a bath. The reason it isn't indicated that on the bottle i've been told is because it is not tested in doses like that in trials, but when she is hospitalized, she is given a dose which is equivalent to the 8ml I give. All I have to do is mark down carefully the dose I gave and time I gave it so I don't give her too much. Her doctor should be able to give youa pretty good indicator about the appropriate amount.

_________________
Daughter 3.5 years) - Dairy, Eggs, Peanuts, Sesame, Beef; asthma and eczema
Daughter (2 years) - Peanuts Eczema
Son (7 months) - Contact allergy to something food undetermined


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PostPosted: Tue Nov 24, 2009 4:19 pm 
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Joined: Mon Apr 11, 2005 9:38 pm
Posts: 928
Location: Oakville, Ontario
So glad your son will be seeing Dr. Waserman! Hooray! You will love her nurse Jan Falcone too - she is very knowledgeable, so make sure you ask her lots of questions too. The actual time you will spend with Dr. Waserman is fairly short (5-10 mins?), so make sure you come well prepared with your questions. I always have them written down so I don't forget anything. McMaster has many interns, so you may meet with an intern and Jan, as well as Dr. Waserman, of course. All questions will be reviewed by Dr. Waserman, so make sure you ask anyone you meet any questions you have. The process is to weigh your child, interview the parents to review history and allergic (or suspected allergic) reactions. For very young children, because the testing is not very comfortable, they only test based on your childs suspected allergies so your child is not put through too much. After skin testing, you wait about 15-20 minutes to determine if there is an allergic reaction the skin scratch test. You will likely not go for the blood test (RAST), but if you do, the blood tests are done in the same hospital.

In the meantime, you may want to contact Anaphylaxis Canada (they have a website) and I believe you can purchase a Junior Epipen over-the-counter. Check with your pharmacist. Otherwise, your family doctor can prescribe one. I have needed to administer the Epipen twice, and it's not nearly as scary as I thought it would be. Besides, seeing the relief my son had of his symptoms withing 5 mins after adminstering made it all worth it.

Good luck!~

_________________
15 yr old daughter: no health issues
12 yr old son: allergic to peanuts, tree nuts, eggs, fish, sesame, sunflower, mustard, poppy seeds, green peas, some fruits, instructed to avoid all other legumes (except soy & green beans), pollen, cats, horses


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PostPosted: Tue Nov 24, 2009 5:44 pm 
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Joined: Tue Oct 06, 2009 11:08 am
Posts: 78
Location: Halifax
I agree with Julie. Always have your questions and concerns written down, so you can easily remember what you need to ask about. Also, I used to make a sheet every time my daughter had a reaction so that I can remember what happened and when. Our allergist here in Halifax is very happy with it and suggested that I provide it for others because it helps doctors really pin down what is happening and why. Eventually, I started using it for the babysitter as well. Here's a copy of it if you are interested in using it until you can get in to see your allergist: http://www.halifaxaag.com/uploads/9/5/0/2/950214/allergic_reaction_review.pdf

Noha

_________________
Daughter: ana to milk, eggs, peanuts, allergy to pet dander, asthma, eczema
Husband: ana to aspartame, shellfish, allergy to pet dander, eczema
Myself: asthma
http://www.allergymom.ca


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PostPosted: Tue Nov 24, 2009 8:04 pm 
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Joined: Fri Nov 13, 2009 5:54 pm
Posts: 7
Location: London, ON
Oh my goodness, thank you all so much!

I will give the allergist's office a call tomorrow and see if a) we can get moved up due to reactions, and b) if not, if they have any suggestions for while we wait.

Thank you for the sheet, Noha - I have a record very similar to that... I bought The Family Health Organizer before my son was born, and it has all this sort of thing in it, and is incredibly helpful. Thank you for your thoughtfulness!

Sadly, I would be better off asking my son's pediatrician to talk to the Lottery Commission for me to see if they can help with my holiday shopping than I would be asking him about Benadryl or even to modify the referral. Truth be told, I wouldn't be even slightly surprised if he'd marked the referral as a non-urgent case, and put on it that there is no rush as this is simply a case of overprotective mother. :x This, of course, is why I'm antsy to see the allergist.

I will start compiling a list of questions right away. That way I'm ready - thank you all so much for the helpful tips, hints and advice, I truly appreciate it!

_________________
I am Care. Mama to Little Prince (08/08/08), wife to Skeeve (06/03/06)

Dairy free since 09/09/09

Skeeve is reactive to milk proteins.
Little Prince takes after his daddy.
Mama bear is reaction-free.


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PostPosted: Fri Nov 27, 2009 2:21 pm 
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Joined: Mon Sep 05, 2005 12:53 am
Posts: 375
Location: Alberta
You can absolutely give Benadryl to kids under the age of 2. There is not dosing, however, on the label. I am a pharmacist, and while my usual line is "not for under the age of 2", if the patient tells me that the doctor told them to come and ask the pharmacist for the dose, I will look it up for them. Sadly, some people think that drugging their kids will make them sleepier, but if I know someone is legitimately under a doctor's care for allergies, I will give the dosage out.

So try that - and have your child's current weight handy, as that is what we use to calculate the dosage.


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PostPosted: Fri Nov 27, 2009 2:29 pm 
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Joined: Mon Sep 05, 2005 12:53 am
Posts: 375
Location: Alberta
Oh, I almost forgot - it's true that Epipens are what's called "Schedule 2", which means that it is pharmacist-prescribed. It is still preferred that a patient have a prescription from a doctor for it though, especially if you want it covered by your insurance plan. I usually will give it out to people who have it on their medication records, but the prescription has run out or the Epi has expired. Just because a medication is Schedule 2, doesn't mean that the patient has a "right" to get it whenever they ask. If that were the case, it would be out on the shelf! Insulin and Tylenol #1's are in the same category, and it would be downright dangerous if insulin were free for anyone to just demand whenever they felt like it.

Next reaction, when you visit any doctor, ask them for a prescription. I've seen several scripts for young children from Urgent Care doctors, while those kids are waiting out allergist appointments. Our first Epi-pen was not prescribed until my son was 2 1/2, I think, as early reactions tended to be self-limiting. Antihistamines did the trick. He has had several episodes of anaphylaxis since though, so now that Epi is tethered to his waist!

9 year old son, ana to milk protein, tree nuts


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