Allergic Living » nfca http://allergicliving.com The magazine for those living with food allergies, celiac disease, asthma and pollen allergies. Fri, 17 May 2013 18:36:20 +0000 en-US hourly 1 http://wordpress.org/?v=3.5.1 Cool Things to do for Celiac Awareness Month http://allergicliving.com/index.php/2013/05/01/12-things-to-do-for-celiac-awareness-month/ http://allergicliving.com/index.php/2013/05/01/12-things-to-do-for-celiac-awareness-month/#comments Wed, 01 May 2013 21:10:52 +0000 Allergic Living http://allergicliving.com/?p=17214 May is Celiac Awareness Month, and events are happening across North America to raise funds for research, spread awareness, and support special programs for people with the autoimmune disease.

Check out Allergic Living’s roundup of celiac disease events taking place in May 2013:

What: Silent Auction
Where: Online
When: May 1 to May 15

Jenna Drew, aka Miss New Jersey International 2013, will be hosting an online auction on her website, with all proceeds going to benefit the National Foundation for Celiac Awareness (NFCA). Items up for grabs include:

• Trip for two to the 2014 Super Bowl

• Family Trip for Four to Disney World – four days and three nights

• Tickets for the Country Music Awards

• 2014 Masters Golf Tournament Experience

Click here for more information

 

What: Celiac Awareness Tour
Where: Philadelphia, PA
When: Saturday, May 18

This travelling celiac expo stops in Philly on May 18. Admission is $10, but children under 10 enter for free. Meet medical experts and watch a cooking demonstration on the Rudi’s Gluten Free Bakery Stage, while sampling gluten-free products from dozens of local and national companies.

Click here for more information and to register

What: Celiac Fundraising Walk/Run
Where: Various locations (see below)
When: May 4 to May 19

Making Tracks for Celiacs is an annual 5K walk/run to raise funds for celiac research, awareness and programs. The proceeds are split so that 75 percent goes to support research and national initiatives, while the remaining 25 percent will support local communities throughout the USA. Sign up and join this 12th annual fundraising event!

Dates/Locations:

May 4 Hoover Metropolitan Stadium, Birmingham, AL
May 4 Holy Family Catholic High School, Minneapolis/St. Paul, MN
May 11 Clarence Town Park, Buffalo, NY
May 19 University of Maryland, Baltimore, MD
May 19 Edsel and Elanor Ford House, Tri-County, MI

Click here for more information

What: Safe Food Fundraiser
Where: Ontario, Canada: Various locations.
When: Mondays in May

Each Monday this May, the Canadian Celiac Association is partnering with Turtle Jack’s Muskoka Grill for their Right to Safe Food fundraiser. After downloading a coupon from the CCA’s website, participants can bring it to a participating Turtle Jack’s location and have 25 percent of their bill donated to the CCA’s Right to Safe Food program.
Click here for more information

What: Food & Fashion Event
Where: Ridgefield, NJ
When: Thursday, May 16

Hosted by the Teens Living with Celiac Foundation, all proceeds from this event will go to NFCA. The event includes a full course gluten-free dinner, fashion show, DJ, raffle, bar and a special guest speaker.

Click here for more information or to register

What: So Delicious Facebook Fundraiser
Where: Online
When: Month of May

So Delicious Dairy Free will donate $1 to NFCA for every Facebook like they receive during Celiac Awareness Month, up to $5,000. So get liking!

So Delicious Facebook page

What: Gluten-Free Food Fair
Where: Grand Rapids, MI
When: Saturday, May 18

Anchor Baptist Church is hosting their 7th annual gluten-free food fair in Grand Rapids, Michigan. Admission and parking are free, and a variety of gluten-free products will be available for purchase. On top of the vendors, participants can register for conferences to learn more about celiac disease and living gluten-free.

Click here for more information

What: Gluten free cooking class
Where: Philadelphia, PA
When: Saturday, May 25

Laura Hahn, winner of NBC’s “Next Local TV Chef”, will reveal her secrets to gluten-free cooking. In two hours, participants will learn how to make an entire Vietnamese meal that’s both delicious and gluten-free.

Click here for more information and to purchase tickets

What: ‘Louisiana Purchase’ Fundraising Dinner
Where: Edmonton, AB
When: Sunday, May 26

The Edmonton Chapter of the Canadian Celiac Associationare hosting their annual “Louisiana Purchase” fundraising dinner, one of the most popular celiac events for the chapter. For less than $40, attendees receive a three-course meal, deliciously free of gluten. In order to attend, registration is required before Wednesday, May 22 at 3 p.m., and no late registrations will be accepted.

Click here for more information

]]> http://allergicliving.com/index.php/2013/05/01/12-things-to-do-for-celiac-awareness-month/feed/ 0 Guide for Talking to Family About Celiac Testing http://allergicliving.com/index.php/2012/08/15/guide-for-talking-to-family-members-about-celiac-testing/ http://allergicliving.com/index.php/2012/08/15/guide-for-talking-to-family-members-about-celiac-testing/#comments Wed, 15 Aug 2012 22:25:31 +0000 Allergic Living http://allergicliving.com/?p=14354 The following information is courtesy of the National Foundation for Celiac Awareness (NFCA)

Having a relative with celiac disease increases your risk of developing celiac, but many parents, siblings and family members are resistant to getting tested.

Earlier this year, NFCA collaborated with the Celiac Center at Beth Israel Deaconess Medical Center (BIDMC) in Boston to address that challenge through guiding the work of Claudia Dolphin, a graduate student from Emerson College’s Master’s in Health Communication program. Claudia’s research project “Screening for Health: Attitudes and Beliefs of Non-Participants in Disease Testing” examined the thoughts and attitudes of family members who had not been tested for celiac disease despite having a relative with the disease.

The study revealed that many family members were unaware that undiagnosed celiac disease often presents without any outward symptoms, and 64 percent of those surveyed said they would get tested for celiac disease if a family member asked them to.

In response to those results, Claudia developed the tools for diagnosed individuals to talk with their family members about celiac disease testing. NFCA is excited to announce the launch of this content in the form of new webpages and a Printable Guide. In addition, there is a new webpage and Guide to help your family members talk to their doctors about getting tested for celiac.

The NFCA and BIDMC teams hope that these new resources will help you begin this important conversation with your relatives. It could be a life-saving chat!

View the new webpages:

Celiac Disease in Families – Includes a Printable Guide that family members can bring to their doctors
Talking to Your Family About Celiac Disease Testing – Includes a Printable Guide with talking points to start your conversation with relatives
Who is at Risk? – Lists risk factors for celiac disease, including family history

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