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	<title>Allergic Living &#187; Sabrina&#8217;s Law</title>
	<atom:link href="http://allergicliving.com/index.php/tag/sabrinas-law/feed/" rel="self" type="application/rss+xml" />
	<link>http://allergicliving.com</link>
	<description>The magazine for those living with food allergies, celiac disease, asthma and pollen allergies.</description>
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		<title>Prison Allergy Death Sparks Investigation</title>
		<link>http://allergicliving.com/index.php/2012/12/03/prison-allergy-death-sparks-investigation/</link>
		<comments>http://allergicliving.com/index.php/2012/12/03/prison-allergy-death-sparks-investigation/#comments</comments>
		<pubDate>Mon, 03 Dec 2012 16:25:38 +0000</pubDate>
		<dc:creator>Jennifer Van Evra</dc:creator>
				<category><![CDATA[Food Allergy]]></category>
		<category><![CDATA[allergy death]]></category>
		<category><![CDATA[allergy tragedy]]></category>
		<category><![CDATA[anaphylaxis death]]></category>
		<category><![CDATA[dairy]]></category>
		<category><![CDATA[dairy allergy]]></category>
		<category><![CDATA[drugs & allergies]]></category>
		<category><![CDATA[epinephrine auto-injector]]></category>
		<category><![CDATA[Epipen]]></category>
		<category><![CDATA[food allergies]]></category>
		<category><![CDATA[Marijuana allergy]]></category>
		<category><![CDATA[Sabrina Shannon]]></category>
		<category><![CDATA[Sabrina's Law]]></category>

		<guid isPermaLink="false">http://allergicliving.com/?p=15372</guid>
		<description><![CDATA[Update January 2013: Many Allergic Living readers expressed concern about the death in prison of Michael Saffioti, a Washington State man with severe dairy allergy and asthma. In early January, the Snohomish County Prosecutor made the decision not to lay any charges, based on a 400-page report compiled by the County Sherriff&#8217;s Office. The report [...]]]></description>
				<content:encoded><![CDATA[<p><a href="http://allergicliving.com/wp-content/uploads/2012/12/Michael-Saffioti.jpeg"><img class="alignright  wp-image-15378" title="Michael Saffioti" src="http://allergicliving.com/wp-content/uploads/2012/12/Michael-Saffioti-300x259.jpeg" alt="" width="270" height="233" /></a><em><strong>Update January 2013:</strong> Many Allergic Living readers expressed concern about the death in prison of Michael Saffioti, a Washington State man with severe dairy allergy and asthma. In early January, the Snohomish County Prosecutor made the decision not to lay any charges, based on a 400-page report compiled by the County Sherriff&#8217;s Office. The report has not been made public, but Saffioti&#8217;s mother says she and her lawyer will be reviewing it. Saffioti was supposed to be housed in the medical wing of the jail, but was not.<br />
</em></p>
<p><em>The following article is from the Winter 2013 of Allergic Living <a href="http://allergicliving.com/index.php/subscriptions-renewals/">magazine</a>.</em></p>
<p>Michael Saffioti’s mom Rose thought her 22-year-old son was doing the right thing by turning himself into police after a missed court date last July. But for the Washington state man, who had a life-threatening allergy to dairy, one night in jail turned into a death sentence.</p>
<p>The young man had landed in the court system on a misdemeanor marijuana possession charge – he spoke of using pot to curb crippling anxiety about his food allergy and asthma – and then a legal technicality led to him spending a night in the county prison.</p>
<p>Under normal circumstances, he would have gone before a judge then been released, but Saffioti never made it past breakfast. According to witness testimony from fellow inmates, the young man was given a meal that included a pancake and oatmeal, and when he reminded staff of his <a href="http://allergicliving.com/index.php/category/food-allergy-2/milk-egg-food-allergy-2/">dairy allergy</a>, they removed the pancake and told him the oatmeal was safe.</p>
<p>After a few spoonfuls, Saffioti began having difficulty breathing and asked for his asthma medication. Soon after, the prisoners were locked into their cells and the guards changed shifts. Saffioti’s reaction continued to worsen. According to Anne Bremner, the Seattle lawyer representing the family, Saffioti pressed his emergency button and called for medical help, but his emergency light got turned off; as his breathing grew more labored, Saffioti pleaded for someone to call 911.</p>
<p>Other inmates say they began pressing their emergency buttons and yelling for help, making clear that this guy was not faking. Their calls were ignored.</p>
<p>Saffioti was supposed to be housed in the prison’s medical ward, and his mother had made sure that corrections staff had his asthma medication, EpiPen auto-injector and medical records, and yet no help came for at least 20 minutes. A prison trustee (an inmate who has work privileges) said he watched in horror as Saffioti finally collapsed in his cell. By the time paramedics arrived, it was too late.</p>
<p>“The trustee is a tough guy, but he said it’s the worst thing he’s ever seen,” says Bremner. “They let this guy die, and he was begging for help.”</p>
<p>Next:<strong> Mother&#8217;s Actions</strong></p>
<p><span id="more-15372"></span></p>
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		<title>FAAMA: Inside the U.S. School Allergy Law</title>
		<link>http://allergicliving.com/index.php/2011/01/12/qa-faama-school-allergy-law/</link>
		<comments>http://allergicliving.com/index.php/2011/01/12/qa-faama-school-allergy-law/#comments</comments>
		<pubDate>Wed, 12 Jan 2011 19:57:24 +0000</pubDate>
		<dc:creator>Allergic Living</dc:creator>
				<category><![CDATA[School and Allergies, Asthma]]></category>
		<category><![CDATA[allergies and education]]></category>
		<category><![CDATA[allergies and school]]></category>
		<category><![CDATA[allergy law]]></category>
		<category><![CDATA[FAAMA]]></category>
		<category><![CDATA[Sabrina's Law]]></category>
		<category><![CDATA[school allergy guidelines]]></category>
		<category><![CDATA[school allergy law]]></category>

		<guid isPermaLink="false">http://allergicliving.com/?p=10018</guid>
		<description><![CDATA[On January 4, 2011, President Barack Obama passed the Food Safety Modernization Act. Tucked into this sweeping act as Section 112 is FAAMA, the long-awaited Food Allergy and Anaphylaxis Management Act. The Food Allergy &#38; Anaphylaxis Network led the lobby for FAAMA, which will result in voluntary allergy management guidelines for schools across the United [...]]]></description>
				<content:encoded><![CDATA[<p>On January 4, 2011, President Barack Obama passed the Food Safety Modernization Act. Tucked into this sweeping act as Section 112 is FAAMA, the long-awaited Food Allergy and Anaphylaxis Management Act.</p>
<p>The Food Allergy &amp; Anaphylaxis Network led the lobby for FAAMA, which will result in voluntary allergy management guidelines for schools across the United States. FAAN started pressing for the legislation back in 2005, when it held the first of three Kids’ Congresses on Capitol Hill.</p>
<p><em>Allergic Living</em> Editor <strong>Gwen Smith</strong> interviews <strong>Chris Weiss</strong>, FAAN’s vice president of Advocacy and Government Relations, about FAAMA and what the guidelines will mean for American students at risk of anaphylaxis.</p>
<p><strong>Q&amp;A: WHAT FAAMA WILL MEAN</strong></p>
<p>Gwen Smith: First, congratulations on FAAMA&#8217;s passing – after all the hard work.<br />
Chris Weiss: Thank you.</p>
<p>GS: There was a lot of delay with this bill. After 5 years of lobbying, how did FAAMA finally get passed?<em></em></p>
<p>CW: Senator [Christopher] Dodd from Connecticut, early in 2010, was able to insert FAAMA into the larger Food Safety Bill. The reason he did that – and it was very smart on his part – was because Congress was pretty busy last year and the chance of Congress considering FAAMA as a standalone bill became sort of unlikely.<br />
The chance of Congress considering the Food Safety Bill, however, became probable. And so Dodd was able to insert FAAMA into the larger Food Safety Bill [officially known as the Food Safety Modernization Act].</p>
<p>GS: The food allergy community is excited by FAAMA’s success. But can you tell readers: What does this new law mean?</p>
<p>CW: It simply calls on the federal government to create food allergy management guidelines for the schools. This is a tremendous thing because, to date, there has been no guidance from the federal level at all on food allergies. A few states have published guidelines, some school districts have done so, some individual schools have done so. But there was nothing coming down from the federal level.</p>
<p>GS: And why is that so important Chris?</p>
<p>CW: Well basically because it gives any school in the U.S. – in any state, in any town, in any city – it gives them something to look to if they need help managing students with food allergies. In essence, we sort of killed 50 birds with one stone by passing this law. Any federal guidance [in the guidelines] would be applicable to all 50 states.</p>
<p>GS: <em>Allergic Living</em> is getting some specific questions such as: “But I live in New York state and there’s a law, or in Massachusetts, we already food allergy guidelines in the state. How will FAAMA work in conjunction with what’s already in place in those states?</p>
<p>CW: This is a good question. There are about 12 states that already have published food allergy management guidelines for schools. Roughly 12, give or take one. If you look at all of those documents, they’re essentially the same. They’re 99 per cent similar.<br />
Whatever comes out of the federal government as a result of FAAMA will likely be similar to these existing state documents.<br />
So it’s not as if the federal guidance will trump the state guidance. It’s not as if the state guidance will trump the federal guidance. Everything is going to be essentially the same content. [CW agrees that federal guidelines will be reinforcement for a state law.]</p>
<p><strong>Next: </strong>The Guidelines, Getting to FAAMA</p>
<p><span id="more-10018"></span></p>
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		<title>Sabrina&#8217;s Nutty Tale</title>
		<link>http://allergicliving.com/index.php/2010/09/15/sabrinas-nutty-tale/</link>
		<comments>http://allergicliving.com/index.php/2010/09/15/sabrinas-nutty-tale/#comments</comments>
		<pubDate>Wed, 15 Sep 2010 14:01:14 +0000</pubDate>
		<dc:creator>Allergic Living</dc:creator>
				<category><![CDATA[Videos]]></category>
		<category><![CDATA[anaphylaxis]]></category>
		<category><![CDATA[CBC]]></category>
		<category><![CDATA[Sabrina Shannon]]></category>
		<category><![CDATA[Sabrina's Law]]></category>

		<guid isPermaLink="false">http://allergicliving.com/?p=7759</guid>
		<description><![CDATA[In May 2001, CBC Radio aired a first-person radio documentary about living with food allergies. It was called “A Nutty Tale,” and featured Sabrina Shannon, a vivacious girl who captured listeners’ hearts. Two years later, Sabrina tragically died from an anaphylactic reaction at her high school. But her legacy – and her voice – live [...]]]></description>
				<content:encoded><![CDATA[<p>In May 2001, CBC Radio aired a first-person radio documentary about living with food allergies. It was called “A Nutty Tale,” and featured Sabrina Shannon, a vivacious girl who captured listeners’ hearts.</p>
<p>Two years later, Sabrina tragically died from an anaphylactic reaction at her high school.<br />
But her legacy – and her voice – live on. CBC Radio has kindly given Allergic Living permission to relaunch its web feature built around “A Nutty Tale”. The following documentary serves as a testament to a great girl, one we will never forget. – Gwen Smith</p>
<p><a href="http://allergicliving.com/sabrinas-story/presentation.html"><img class="aligncenter size-full wp-image-7763" title="screencap.sabrina-story" src="http://allergicliving.com/wp-content/uploads/2010/09/screencap.sabrina-story.png" alt="Sabrina Shannon documentary" width="400" height="302" target="_blank" /></a></p>
<p>Also, read the story: <a href="http://allergicliving.com/index.php/2010/07/02/sabrinas-law-the-girl-and-the-allergy-law/">Sabrina&#8217;s Law</a></p>
]]></content:encoded>
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		<item>
		<title>Sabrina’s Law Turns Five</title>
		<link>http://allergicliving.com/index.php/2010/07/02/guest-column-sara-shannon-sabrinas-law/</link>
		<comments>http://allergicliving.com/index.php/2010/07/02/guest-column-sara-shannon-sabrinas-law/#comments</comments>
		<pubDate>Fri, 02 Jul 2010 22:40:12 +0000</pubDate>
		<dc:creator>Sara Shannon</dc:creator>
				<category><![CDATA[Guest Column]]></category>
		<category><![CDATA[Sabrina's Law]]></category>

		<guid isPermaLink="false">http://allergicliving.ds566.alentus.com/?p=775</guid>
		<description><![CDATA[  I am very proud, honoured and humbled by the success of Sabrina&#8217;s Law at the 5th anniversary of its passage in Ontario. We live in a good world where something like Sabrina&#8217;s Law comes out of such tragedy. It is truly remarkable. I feel Sabrina is proud of the law that’s named after her [...]]]></description>
				<content:encoded><![CDATA[<p><strong> </strong></p>
<p>I am very proud, honoured and humbled by the success of Sabrina&#8217;s Law at the 5th anniversary of its passage in Ontario. We live in a good world where something like Sabrina&#8217;s Law comes out of such tragedy. It is truly remarkable.</p>
<p>I feel Sabrina is proud of the law that’s named after her to protect anaphylactic students. I can&#8217;t be sure, of course, but it is a feeling I have: that she is very much alive, that she lives on through Sabrina’s Law. I am awed by all the allergy accommodation achievements that have happened because of Sabrina&#8217;s Law; it is truly amazing to witness results throughout the world.</p>
<p>It is also such great news about Sabrina&#8217;s scholarship that <a href="http://www.whyriskit.ca/pages/posts/anaphylaxis-canada-announces-award-for-canadian-students24.php">Anaphylaxis Canada</a> has started. Sabrina would have been going to university now. She would have been 20 years old on May 29. It is like she growing up with the development of the scholarship. She will be going university through “her” scholarship and supporting other students’ potential. She will be part of their university or college experience. This makes me very proud.</p>
<p>Thank you, Gwen [<em>Allergic Living</em>’s editor], for taking time to write about my beautiful Sabrina. Or should I say, &#8220;Our Sabrina&#8221;. Our Sabrina, since Sabrina Law&#8217;s is for everyone. – <em>Sara Shannon, Pembroke, Ontario</em></p>
<p><strong>Related Reading:</strong></p>
<ul>
<li>Sabrina&#8217;s <a href="http://allergicliving.com/sabrinas-story/"><strong>&#8216;A Nutty Tale&#8217;</strong></a><strong> </strong>documentary.</li>
<li>Sabrina&#8217;s Law at <a href="http://www.allergicliving.com/features.asp?copy_id=362"><strong>5 Years Old.</strong></a></li>
<li><strong></strong><a href="http://www.allergicliving.com/features.asp?copy_id=41"><strong>Sabrina&#8217;s Law</strong></a> Resources: School Allergy Laws and Policies.</li>
<li>Our award-winning Sabrina&#8217;s <a href="http://www.allergicliving.com/features.asp?copy_id=17"><strong>Story.</strong></a></li>
<li>Sara Shannon&#8217;s <a href="http://www.allergicliving.com/features.asp?copy_id=104"><strong>Journey.</strong></a></li>
</ul>
]]></content:encoded>
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		<item>
		<title>Schools and Allergies Resource Hub</title>
		<link>http://allergicliving.com/index.php/2010/07/02/schools-and-allergies-resource-hub/</link>
		<comments>http://allergicliving.com/index.php/2010/07/02/schools-and-allergies-resource-hub/#comments</comments>
		<pubDate>Fri, 02 Jul 2010 18:19:05 +0000</pubDate>
		<dc:creator>Allergic Living</dc:creator>
				<category><![CDATA[School and Allergies, Asthma]]></category>
		<category><![CDATA[allergic kids and school]]></category>
		<category><![CDATA[allergies and school]]></category>
		<category><![CDATA[allergies school snacks]]></category>
		<category><![CDATA[allergy law and schools]]></category>
		<category><![CDATA[elementary school and allergies]]></category>
		<category><![CDATA[food allergy]]></category>
		<category><![CDATA[Sabrina Shannon]]></category>
		<category><![CDATA[Sabrina's Law]]></category>
		<category><![CDATA[safe school snacks]]></category>
		<category><![CDATA[safe-school-hp]]></category>
		<category><![CDATA[school allergy]]></category>
		<category><![CDATA[schools allergies]]></category>
		<category><![CDATA[sending allergic kids to school]]></category>

		<guid isPermaLink="false">http://allergicliving.ds566.alentus.com/?p=350</guid>
		<description><![CDATA[Food Allergy Action Plans UNITED STATES FAAN&#8217;s Back-to-School Tool Kit FAAN&#8217;s Food Allergy Action Plan Food Allergy Initiative&#8217;s Authorization of Emergency Treatment Form FAAN/FAI e-learning resource, comprehensive tool for teachers. www.allergyready.com Federal 504 Plan AAFA on the Americans with Disabilities Act (ADA) National Assn of School Nurses&#8217; Anaphylaxis Provision of Care documents CANADA Comprehensive resource - Allergy Safe Communities [...]]]></description>
				<content:encoded><![CDATA[<p><strong>Food Allergy Action Plans</strong></p>
<p><strong>UNITED STATES</strong><strong> </strong></p>
<p>FAAN&#8217;s Back-to-School <strong><a href="http://bit.ly/ahIiaK" target="_blank">Tool Kit</a></strong><br />
FAAN&#8217;s <a href="http://www.foodallergy.org/files/FAAP.pdf" target="_self"><strong>Food Allergy Action Plan</strong><br />
</a>Food Allergy Initiative&#8217;s <strong><a href="http://www.faiusa.org/document.doc?id=4">Authorization of Emergency Treatment</a> </strong>Form<br />
<strong></strong>FAAN/FAI e-learning resource, comprehensive tool for teachers. <strong><a href="http://www.allergyready.com">www.allergyready.com</a></strong><br />
Federal <strong><a href="http://www2.ed.gov/about/offices/list/ocr/504faq.html" target="_self">504 Plan</a></strong><br />
AAFA on the Americans with Disabilities Act<strong> </strong>(<strong><a href="http://www.aafa.org/display.cfm?id=9&amp;sub=19&amp;cont=255" target="_self">ADA</a></strong>) <strong><br />
</strong>National Assn of School Nurses&#8217; <strong><a href="http://www.nasn.org/ToolsResources/FoodAllergyandAnaphylaxis/AnaphylaxisProvisionofCareAlgorithm">Anaphylaxis Provision of Care</a> </strong>documents<br />
<strong></strong></p>
<p><strong>CANADA</strong></p>
<p>Comprehensive resource - <a href="http://www.allergysafecommunities.ca/default.asp?catid=16" target="_blank"><strong>Allergy Safe Communities</strong></a><strong></strong> site.</p>
<ul>
<li>Allergy Safe Communities&#8217; <a title="FA Action Plan" href="http://www.allergysafecommunities.ca/assets/epipen-eng.pdf" target="_blank">Emergency Plan for EpiPen</a></li>
<li>Allergy Safe Communities&#8217; <a title="FA Action Plan - TwinJect" href="http://www.allergysafecommunities.ca/assets/Twinject-New-Poster-E.pdf" target="_blank">Emergency Plan for Twinject</a><em></em></li>
<li>Sample letter from <a href="http://www.allergysafecommunities.ca/pages/default.asp?catid=34&amp;catsubid=69" target="_blank">principal</a></li>
<li>Sample letter from <a href="http://www.allergysafecommunities.ca/pages/default.asp?catid=34&amp;catsubid=70" target="_blank">teacher</a></li>
<li>Steps for <a href="http://www.allergysafecommunities.ca/pages/default.asp?catid=34&amp;catsubid=68" target="_blank">school anaphylaxis plan</a><strong><a href="http://www.allergysafecommunities.ca/pages/default.asp?catid=34&amp;catsubid=68" target="_blank"><br />
</a></strong></li>
</ul>
<p>Also: Canadian School Boards Association publication:<br />
<em>Anaphylaxis: <a href="http://www.safe4kids.ca/content/schools/anaphylaxis_eng.pdf">A Handbook for School Boards</a></em> (New Edition)</p>
<p><strong>Asthma Action Plans</strong></p>
<ul>
<li><strong>Alberta&#8217;s Asthma </strong><a href="http://www.canahome.org/resources.html" target="_blank">Action Plan</a> (Canada)<strong><br />
</strong></li>
<li><strong>The Lung Association&#8217;s</strong> <a href="http://www.lung.ca/_resources/asthma_action_plan.pdf" target="_blank">Action Plan</a> (Canada)</li>
<li><strong>AAFA&#8217;s</strong> Student Asthma <a href="http://aafa.org/pdfs/AsthmaActionCardstudent.pdf" target="_blank">Action Card</a> (USA)</li>
<li><strong>American Academy of Family Physicians Asthma</strong> <a href="http://allergicliving.com/American%20Academy%20of%20Family%20Physicians%20Asthma%20Action%20Plan:" target="_blank">Action Plan</a> (USA)</li>
</ul>
<p><strong><em>Allergic Living</em>&#8216;s School Articles</strong></p>
<ul>
<li><strong>Food in the Classroom</strong> &#8211; click <strong><a href="http://www.allergicliving.com/features.asp?copy_id=127" target="_blank">here</a></strong><strong></strong></li>
<li><strong><em>Allergic Living&#8217;s</em> </strong>award-winning article &#8211; <strong><a href="http://allergicliving.com/index.php/2010/07/02/sabrinas-law-the-girl-and-the-allergy-law/" target="_self">Sabrina&#8217;s Law</a></strong></li>
<li><strong>Hear Sabrina</strong> &#8211; Her moving CBC radio documentary &#8211; <a href="http://allergicliving.com/index.php/2010/09/15/sabrinas-nutty-tale/" target="_self">A Nutty Tale</a></li>
<li><strong>FAAMA:</strong> Inside the U.S. Food Allergy Law <strong><a href="http://allergicliving.com/index.php/2011/01/12/qa-faama-school-allergy-law/">here</a></strong></li>
<li>Laurie Harada: <strong>Talking to School Officials <a href="http://www.allergicliving.com/columns.asp?copy_id=339" target="_blank">here</a><br />
</strong></li>
<li>Laurie Harada: <strong>Off to Kindergarten</strong> - <a href="http://www.allergicliving.com/columns.asp?copy_id=184" target="_blank"><strong>here</strong></a></li>
<li>Laurie Harada: <strong>If Your Child is Bullied</strong> - <strong><a href="http://www.allergicliving.com/columns.asp?copy_id=99" target="_blank">here</a></strong></li>
<li><strong>Food Allergy and the Risky Teenage Years</strong> - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=43" target="_blank">here</a></strong></li>
<li><strong>Sabrina&#8217;s Law:</strong> The Girl Who Inspired Change - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=17" target="_blank">here</a></strong></li>
<li><strong>Who&#8217;s Watching Lunch at School? </strong>New excerpt<strong> <a href="http://www.allergicliving.com/features.asp?copy_id=297" target="_blank">here</a><br />
</strong></li>
<li><strong>Off to College with Allergies</strong> - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=67" target="_blank">here</a></strong></li>
<li><strong>Teens Talk</strong>: Life with Allergies - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=65">here</a></strong></li>
<li>Samantha Yaffe: <strong>Grade 1 and Letting Go</strong> &#8211; click <strong><a href="http://www.allergicliving.com/columns.asp?copy_id=191" target="_blank">here</a></strong></li>
<li><strong>Kids, Anxiety and Anaphylaxis</strong> - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=155">here</a></strong></li>
<li><strong>Backlash</strong> Against School Accommodations - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=258" target="_blank">here</a></strong></li>
<li><strong>Air Quality</strong> at School - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=183" target="_blank">here</a></strong></li>
<li>The September <strong>Asthma Spike</strong> - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=129" target="_blank">here</a></strong></li>
<li><strong>Sara Shannon&#8217;s Journey</strong> with Sabrina&#8217;s Law -<em> </em><strong><a href="http://www.allergicliving.com/features.asp?copy_id=104" target="_blank">here</a></strong></li>
<li>Reader&#8217;s Story: <strong>Sabrina&#8217;s Law Success</strong> - <strong><a href="http://www.allergicliving.com/features.asp?copy_id=10" target="_blank">here</a></strong></li>
<li><strong>Sabrina&#8217;s Law in Context</strong> &#8211; For a Kid, <a href="http://allergicliving.com/features.asp?copy_id=90"><strong>Dairy Allergy</strong> is a Life Changer</a></li>
</ul>
<p><strong>State and Provincial anaphylaxis laws, policies and guidelines,</strong> click <a href="http://allergicliving.com/index.php/2010/07/02/sabrinas-law-school-allergy-laws-and-policies/">here.</a></p>
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		<title>Canada &amp; U.S. Anaphylaxis Laws, Guidelines</title>
		<link>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-school-allergy-laws-and-policies/</link>
		<comments>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-school-allergy-laws-and-policies/#comments</comments>
		<pubDate>Fri, 02 Jul 2010 18:12:52 +0000</pubDate>
		<dc:creator>Allergic Living</dc:creator>
				<category><![CDATA[School and Allergies, Asthma]]></category>
		<category><![CDATA[allergy advocacy]]></category>
		<category><![CDATA[allergy policy]]></category>
		<category><![CDATA[Sabrina's Law]]></category>

		<guid isPermaLink="false">http://allergicliving.ds566.alentus.com/?p=342</guid>
		<description><![CDATA[Canada Ontario&#8217;s legislation &#8211; Sabrina&#8217;s Law, the precedent-setting anaphylaxis legislation Alberta policy &#8211; ASBA Allergy and Anaphylaxis Policy Advisory British Columbia &#8211; Ministerial Order: British Columbia Anaphylaxis and Child Safety Framework Manitoba &#8211; 2008 law / Bill 232: The Public Schools Amendment Act (Anaphylaxis Policies) New Brunswick policy &#8211; Health Support Services policy for anaphylaxis Nova Scotia guidelines [...]]]></description>
				<content:encoded><![CDATA[<p><strong>Canada</strong></p>
<ul>
<li><a href="http://www.e-laws.gov.on.ca/html/statutes/english/elaws_statutes_05s07_e.htm" target="_blank">Ontario&#8217;s legislation</a> &#8211; Sabrina&#8217;s Law, the precedent-setting anaphylaxis legislation</li>
<li><strong>Alb</strong><strong>erta policy</strong> &#8211; ASBA Allergy and <a href="http://education.alberta.ca/admin/healthandsafety/aair.aspx" target="_blank">Anaphylaxis Policy Advisory</a></li>
<li><strong>British Columbia</strong> &#8211; Ministerial Order: British Columbia Anaphylaxis and Child <a href="http://www.bced.gov.bc.ca/health/bc_anaphylactic_child_safety.pdf" target="_blank">Safety Framework</a></li>
<li><strong>Manitoba</strong> &#8211; 2008 law / Bill 232: The Public Schools Amendment Act (<a href="http://web2.gov.mb.ca/laws/statutes/2008/c04608e.php" target="_blank">Anaphylaxis Policies</a>)</li>
<li><strong>New Brunswick</strong> policy &#8211; Health Support Services <a href="http://www.gnb.ca/0000/pol/e/704A.pdf" target="_blank">policy for anaphylaxis</a></li>
<li><strong>Nova Scotia</strong> guidelines &#8211; schools follow <em>Anaphylaxis in Schools &amp; Other Settings<a href="http://allergysafecommunities.ca/pages/default.asp?catid=33" target="_blank"> Handbook</a></em></li>
<li><strong>Ontario: </strong> For Teachers and Principals &#8211; <a href="http://www.eworkshop.on.ca/cfmx/edu/anaphylaxis/" target="_blank">Ontario e-workshop</a></li>
<li><strong>Elementary Teachers </strong>Federation of Ontario resource &#8211; <a href="http://www.etfo.ca/AdviceForMembers/PRSMattersBulletins/Pages/Epipen%20Fact%20Sheet%20-%20Sabrinas%20Law.aspx" target="_blank">Members Advisory</a> on Sabrina&#8217;s Law</li>
<li><strong>Prince Edward Island</strong> &#8211; Minister&#8217;s Directive: Procedures for <a href="http://www.gov.pe.ca/eecd/index.php3?number=1027945&amp;lang=E">Dealing with Life-Threatening Allergies</a></li>
</ul>
<p><strong>United States</strong></p>
<p>In addition to the federal FAAMA, several states have published (or are about to publish) statewide school food allergy guidelines: Massachusetts, Connecticut (law), Mississippi, New Jersey (law), New York (law), Tennessee (law), Texas (<span style="text-decoration: underline;"><em>new</em></span> law) Vermont (law), Washington, Arizona, West Virginia, Colorado (law), Missouri, Illinois and Ohio. Below are links to those guidelines; plus other regional anaphylaxis policies.<strong><br />
</strong></p>
<ul>
<li><strong>FAAMA</strong> &#8211; <a href="http://allergicliving.com/index.php/2011/01/12/qa-faama-school-allergy-law/">Food Allergy and Anaphylaxis Management Act</a>: expert explains the new federal act<strong>.</strong></li>
<li>CDC on <a href="http://www.cdc.gov/foodsafety/fsma.html">guidelines</a> being developed under FAAMA, see Sect. 112.</li>
<li>AAFA&#8217;s Annual Report on the <a href="http://www.aafa.org/display.cfm?id=5&amp;sub=105&amp;cont=649">State of Asthma and Allergy Policies for Schools</a>; updated for 2011.</li>
<li><strong>Arizona </strong>state guidelines &#8211; Supporting Children with Life Threatening Food Allergies: <a href="http://www.azdhs.gov/phs/oeh/fses/pdf/allergies1007.pdf" target="_blank">School Resource</a></li>
<li><strong>California</strong> &#8211; Sect. 49414 of the state <a href="http://law.onecle.com/california/education/49414.html" target="_blank">Education Code</a></li>
<li>California State PTA Food Allergy and <a href="http://www.capta.org/sections/advocacy/downloads/Resolution2004A.pdf" target="_blank">Anaphylaxis in Schools Resolution;</a><strong> </strong>Helpful <a href="http://www.sandiegofoodallergy.org/" target="_blank">California school resources</a> via the San Diego Food Allergy support group</li>
<li><strong>Colorado</strong> law &#8211; Senate Bill 226: School Children’s Asthma and Anaphylaxis <a href="http://www.state.co.us/gov_dir/leg_dir/olls/sl2009a/sl_245.htm" target="_blank">Health Management Act</a></li>
<li><strong>Connecticut</strong> law &#8211; Act Concerning Food Allergies and the Prevention of <a href="http://www.cga.ct.gov/2005/act/Pa/2005PA-00104-R00SB-01312-PA.htm" target="_blank">Life-threatening Incidents in Schools.</a></li>
<li><a href="http://www.sde.ct.gov/sde/lib/sde/PDF/deps/student/health/Food_Allergies.pdf">Guidelines for Managing Life-Threatening Food Allergies</a> in Connecticut. Schools, resulting from the law.</li>
<li>Connecticut law &#8211; Act Concerning the Use of Anaphylaxis <a href="http://www.cga.ct.gov/2009/ACT/PA/2009PA-00155-R00SB-00755-PA.htm" target="_blank">Medical Devices while at School</a></li>
<li><strong>Florida</strong> school districts <a href="http://www.wct-law.com/CM/ForInstitutions/Guidelines%20for%20Managing%20Life-threatening%20Food%20Allergies%20in%20Illinois%20Schools.pdf">policy review and state position</a>.</li>
<li><strong>Illinois </strong><a href="http://www.isbe.state.il.us/nutrition/pdf/food_allergy_guidelines.pdf">Food Allergy Guidelines:</a> school boards required to implement policies based on these guidelines.</li>
<li><strong><em></em></strong><em><strong></strong></em>Aug. 2011 &#8211; Illinois passes law allowing schools to stock and use <a href="http://www.ilga.gov/legislation/BillStatus.asp?DocNum=3294&amp;GAID=11&amp;DocTypeID=HB&amp;SessionID=84&amp;GA=97">epinephrine auto-injector</a>.<strong> </strong></li>
<li><strong>Kansas </strong>epinephrine law &#8211; House Bill 2008: Administration and Maintenance of <a href="http://www.kansas.gov/government/legislative/bills/2010/2008.pdf">Epinephrine in Schools</a></li>
<li><strong>Maryland</strong> law &#8211; House Bill 26: Public Schools – Children with Anaphylactic Allergies:<a href="http://mlis.state.md.us/2009rs/bills/hb/hb0026e.pdf" target="_blank"> Reduction of Risk;</a><a href="http://www.foodallergy.org/files/Maryland_Updated_Guidelines_2009.pdf"> 2009 guidelines</a></li>
<li><strong>Massachussetts</strong> doesn&#8217;t have law, but guidelines are among the best &#8211; Managing Life Threatening<a href="http://www.doe.mass.edu/cnp/allergy.pdf" target="_blank"> Food Allergies in School</a></li>
<li><strong>Michigan &#8211; </strong>Senate Bill 233: proposed amendment to the <a href="http://legislature.mi.gov/doc.aspx?2009-SB-0233" target="_blank">Revised School Code</a><strong><br />
</strong></li>
<li><strong>Mississippi</strong> guidelines &#8211; Managing Food Allergies in <a href="http://www.healthyschoolsms.org/health_services/documents/GuidelinesforManagingFoodAllergies.pdf" target="_blank">Mississippi Schools</a></li>
<li><strong>Missouri </strong>2009 law - <a href="http://www.house.mo.gov/billtracking/bills091/biltxt/truly/HB0922T.HTM" target="_blank">School Allergy Policy Law</a></li>
<li><strong>New Jersey</strong> law &#8211; <a href="http://www.state.nj.us/education/students/safety/health/services/allergies.pdf">Anaphylaxis Law and Guidelines for Schools</a></li>
<li><strong>New York State</strong> law &#8211; Allergy and Anaphylaxis Management <a href="http://www.schoolhealthservicesny.com/uploads/Anaphylaxis%20Law.doc">Act of 2007</a>, and the <a href="http://www.schoolhealthservicesny.com/uploads/Anaphylaxis%20Final%206-25-08.pdf">2008 guidelines</a>. New York State <a href="http://t.co/UhG1ruOI">medication authorization</a> form.</li>
<li><strong>New Mexico</strong> &#8211; individualized health care plan, <a href="http://www.nmschoolhealthmanual.org/shm_05.pdf">IHP</a>.</li>
<li><strong>Ohio</strong> &#8211; <a href="http://codes.ohio.gov/orc/3313.719">Leglislation</a> that simply requires schools to have a food allergy policy; food allergy policy <a href="http://www.ode.state.oh.us/GD/Templates/Pages/ODE/ODEDetail.aspx?page=3&amp;TopicRelationID=828&amp;ContentID=77746&amp;Content=127793">requirements and guidance</a>.</li>
<li><strong>Pennsylvania</strong> &#8211; House Bill 1148: proposed Dept. of Education <a href="http://www.legis.state.pa.us/CFDOCS/Legis/PN/Public/btCheck.cfm?txtType=HTM&amp;sessYr=2009&amp;sessInd=0&amp;billBody=H&amp;billTyp=B&amp;billnbr=1148&amp;pn=2376" target="_blank">Wellness Policy</a>.</li>
<li><strong>Rhode Island</strong> law &#8211; Sect. 18: Rules &amp; Regulations (2009) for <a href="http://sos.ri.gov/documents/archives/regdocs/released/pdf/DOH/5471.pdf">School Health Programs</a>.</li>
<li><strong>Tennessee </strong>law - <a href="http://www.state.tn.us/sos/acts/104/pub/pc0933.pdf" target="_blank">Brentson&#8217;s Law</a></li>
<li><strong>Texas</strong> <a href="http://bit.ly/gcHB742">state-wide law</a> became effective Sept. 1, 2011.</li>
<li><strong>Vermont</strong> law &#8211; Act 158: An Act Relating to <a href="http://www.leg.state.vt.us/docs/legdoc.cfm?URL=/docs/2006/acts/ACT158.HTM">Life-Threatening Allergies</a> &amp; Chronic Diseases in Schools. and DOE <a href="http://education.vermont.gov/new/html/pgm_nutrition/school_nutrition/resources.html">guidelines</a>.</li>
<li><strong>AAFA&#8217;s</strong> description of  <a href="http://www.aafa.org/display.cfm?id=5&amp;sub=105&amp;cont=657" target="_blank">Vermont model</a>.</li>
<li><strong>Virginia</strong> &#8211; <a href="http://www.loudounallergynetwork.org/lan-school-action-group.html"><strong>Loudoun County Public Schools</strong></a> excellent policy: Caring for Students with Food Allergies in School.</li>
<li><strong>Washington</strong> law &#8211; Legislation requiring uniform allergy and asthma <a href="http://www.k12.wa.us/HealthServices/Publications/09-0009.aspx" target="_blank">prevention and training</a>.</li>
<li><strong>West Virginia</strong> Dept. of Education <a href="http://www.foodallergy.org/files/WVGuidelines.pdf">guidelines for food allergies</a>.</li>
<li><strong><a href="http://dpi.wi.gov/fns/doc/fd_allgs.doc">Wisconsin guidelines</a></strong> on food allergy and anaphylaxis.</li>
<li>For a list of states with laws or regulations allowing students to carry and/or self-administer epinephrine at school, see <a href="http://www.foodallergy.org/Advocacy/advocacy-schools.html" target="_blank">FAAN&#8217;s website</a>.</li>
</ul>
<p><strong>Schools &amp; Allergies Resources Hub</strong> – click <strong><a href="http://allergicliving.com/index.php/2010/07/02/schools-and-allergies-resource-hub/">here</a></strong></p>
<h3><img title="Sabrina" src="http://allergicliving.com/_images/sabrina.jpg" alt="Sabrina" width="250" height="250" border="0" /></h3>
<p>Photo of Sabrina Shannon</p>
<p>If you know of any new laws or guidelines that we&#8217;ve missed, let us know at: <a href="mailto:editor@allergicliving.com" target="_blank">editor@allergicliving.com</a></p>
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		<title>Sara Shannon&#8217;s Reply to Chatelaine&#8217;s &#8216;It&#8217;s Just Nuts&#8217;</title>
		<link>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-sara-shannons-letter-to-chatelaine/</link>
		<comments>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-sara-shannons-letter-to-chatelaine/#comments</comments>
		<pubDate>Fri, 02 Jul 2010 18:09:56 +0000</pubDate>
		<dc:creator>Sara Shannon</dc:creator>
				<category><![CDATA[School and Allergies, Asthma]]></category>
		<category><![CDATA[allergy advocacy]]></category>
		<category><![CDATA[Chatelaine allergy article]]></category>
		<category><![CDATA[Sabrina's Law]]></category>
		<category><![CDATA[Sara Shannon]]></category>

		<guid isPermaLink="false">http://allergicliving.ds566.alentus.com/?p=339</guid>
		<description><![CDATA[By email &#8211; November 16, 2009 To: Ms. Maryam Sanati, Editor-in-chief, Chatelaine Ms. Patricia Pearson, Writer Re: Chatelaine article &#8220;It&#8217;s just nuts&#8221; I hope you received the Sabrina&#8217;s Law documentary about my daughter who died in 2003 at the age of 13 after suffering a fatal allergic reaction. I sent two copies a couple of weeks ago, [...]]]></description>
				<content:encoded><![CDATA[<p><strong>By email &#8211; November 16, 2009</strong></p>
<p><strong>To:</strong> Ms. Maryam Sanati, Editor-in-chief, <em>Chatelaine</em><br />
Ms. Patricia Pearson, Writer<br />
<strong>Re:</strong> Chatelaine article &#8220;It&#8217;s just nuts&#8221;</p>
<p>I hope you received the <em>Sabrina&#8217;s Law</em> documentary about my daughter who died in 2003 at the age of 13 after suffering a fatal allergic reaction. I sent two copies a couple of weeks ago, to the attention of Ms. Sanati, after reading the article &#8220;It&#8217;s Just Nuts,&#8221; which was in the December issue of <em>Chatelaine</em> magazine.</p>
<p>I was completely disheartened by the lack of empathy, sarcastic tone, ridiculous comparisons, and missing facts. I was especially concerned that readers would be left with the impression that the piece was well-researched and painted an accurate picture of what&#8217;s going on in Canadian schools and the wider community. It is far from the truth. You say that &#8220;schools and parents are cowering in fear,&#8221; yet in my travels across North America, I have seen schools working together to keep all children safe.</p>
<p>I wish you had known my beautiful daughter, Sabrina, and I wish I were writing to you today for another reason. Instead, I am writing in hope that you will join me in keeping my promise to my daughter: to educate. While she was on life-support, I told Sabrina that I would do everything possible to prevent a similar tragedy from happening to another family or child.</p>
<p>Had my daughter been alive today, and read &#8220;It&#8217;s Just Nuts,&#8221; she too, like many of your readers, would have been dismayed by such a heartless article. She would have been very disappointed by the adults who wrote and published this piece. She would have told you that children deserve the support of their communities. At the tender age of 10, Sabrina made a radio documentary for CBC Outfront with my sister, Kathleen Whelan, called &#8220;A Nutty Tale&#8221;. Please listen to it - <a href="http://www.cbc.ca/outfront/webfeatures/sabrina/sab_shell.html" target="_blank">http://www.cbc.ca/outfront/webfeatures/sabrina/sab_shell.html</a></p>
<p>You will hear the voice of a creative and knowledgeable youngster using humour, not mockery, to advocate for those at risk of anaphylaxis. It has been listened to around the world and used as a teaching tool. You can tell from her voice that Sabrina did not let her allergies define her, though she did work hard to self-protect and teach others. Today, she may have been a talented writer contributing articles to <em>Chatelaine</em> magazine.</p>
<p>Ms. Pearson is correct in suggesting that peanut allergy has had greater attention from schools and the public in general. This is due to the fact that peanut is one of the most common causes of allergic reactions and death from anaphylaxis. It is also one of the most reported allergies within the school system. Ask any principal. While I agree that more needs to be done to educate the public about other food allergens, &#8220;It&#8217;s Just Nuts&#8221; failed in its attempt to provide any clarity around food allergy, a complex health issue.</p>
<p>In fact, it did more to confuse your readers. The article suggests that food allergies are a myth and there is &#8220;over-blown panic&#8221; within the community; that parents and schools are &#8220;over-reacting&#8221; in their efforts to protect kids with food allergies. It is easy to be an armchair critic about the way others manage a health condition when you do not live with it 24/7. While my daughter ended up being one of the few who died from an allergic reaction, my hope is that you&#8217;ll see her as more than just a statistic.</p>
<p><strong>Mother-to-mother,</strong> let me share <a href="http://www.allergicliving.com/features.asp?copy_id=17" target="_blank">Sabrina&#8217;s story</a>.</p>
<p>Sabrina&#8217;s death from anaphylaxis, while rare, has nothing to do with death from lightning strikes. I found this comparison hugely offensive and ask that you please be considerate of people who have lost children as a result of anaphylaxis. As mothers yourselves, I hope that you would both understand how awful it is to lose a precious child. I cannot describe the devastation that Sabrina&#8217;s death caused to my family, her many friends, and her classmates who witnessed the horror of seeing their friend die. Sabrina was my only child.</p>
<p>Unlike lightning strikes, anaphylaxis is not an unpredictable force of nature. Prevention and safety plans can and should be put in place. Knowledge goes a long way to keeping children safe and they have the right to be safe and feel safe while at school. That is what Sabrina&#8217;s Law is about. I remember feeling very strongly after Sabrina&#8217;s death that if all of the right measures had been in place &#8211; epinephrine, emergency preparedness and, 911 &#8211; maybe she would be alive today. My sentiments were echoed by Dr. Andrew McCallum, then Regional Supervising Coroner for Eastern Ontario, who sent recommendations to the schools in Eastern Ontario.</p>
<p>Ms. Pearson, my daughter (like most food-allergic kids) knew enough not to &#8220;lick her desk,&#8221; but that peanut and other food particles could trigger a reaction if there was a transfer of residue from hand to mouth or from a utensil. The day she died, she ate plain French fries thought to be safe, which had been contaminated by a small amount of dairy not visible to the eye.</p>
<p>Tongs which had been used to serve her fries had previously been used to serve French fries with <em>poutine</em>. Without early treatment with epinephrine, her allergic reaction to dairy escalated quickly, causing her throat to close and shut off oxygen to her brain. She was unconscious within minutes. After a day on life-support at the Children&#8217;s Hospital of Eastern Ontario, Sabrina died, surrounded by people who loved her very much. My worst nightmare had come true.</p>
<p>As the author of &#8220;It&#8217;s Just Nuts,&#8221; Ms. Pearson, you hold the power of the pen to share your views as a freelance writer. Please use it responsibly. Ms. Sanati, as the Editor-in-chief of <em>Chatelaine</em>, you have the ability to reach millions of people with the right facts, by choosing what goes into print. Instead of creating controversy, let&#8217;s try to build bridges, not walls.</p>
<p>I am sharing my letter with Sabrina&#8217;s father, Mike Shannon, and the many others I have had the privilege of meeting since Sabrina&#8217;s death. These individuals have made efforts to improve management plans in schools, create safer products and environments for those at risk of anaphylaxis, and increase public awareness. They are school communities, politicians (Premier Dalton McGuinty, Kathleen Wynne, Minister of Education, Cheryl Gallant, MP Renfrew-Nipissing-Pembroke, Gerard Kennedy, MP Parkdale-High Park (former Ontario Education Minister), Dave Levac, MPP Brant, John Yakabuski, MPP Renfrew-Nipissing-Pembroke); government representatives (Health Canada, Canadian Food Inspection Agency, and Veterans Affairs Canada); the allergy and medical community (Canadian Society of Allergy and Clinical Immunology, AllerGen), Anaphylaxis Canada, Allergy/Asthma Information Association, Association québécoise des allergies alimentaires, Canadian MedicAlert Foundation, Food Allergy &amp; Anaphylaxis Network, Food Allergy Initiative/Robert Kennedy Jr., <em>Allergic Living</em> magazine, Niagara Anaphylaxis Support &amp; Knowledge and other local support groups, CHEO); industry (King Pharmaceuticals Canada, Paladin Labs, food manufacturers, Canadian Peanut Bureau, Dairy Farmers of Canada, Egg Farmers of Canada); and Canadian and American documentary producers (Lank/Beach Productions, The National Film Board of Canada, Merit Motion Productions, Sharona Schwartz, and Dr. Sanjay Gupta).</p>
<p>Though the article failed to recognize the important work of this wider community over the years, I continue to appreciate the progress that has been made by these organizations and others, too many to mention here. It is too bad that <em>Chatelaine</em> chose to omit many of the good news stories.</p>
<p>Clearly, more work needs to be done to increase <em>Chatelaine</em>&#8216;s understanding of the efforts of such a diverse group, all focused on a common goal: protection of people with severe allergies, especially children.</p>
<p>In closing, I would ask Rogers, the publishers of <em>Chatelaine</em> magazine, to consider the impact of articles such as &#8220;It&#8217;s Just Nuts&#8221;. You have a moral obligation to provide balance and proper facts when highlighting children&#8217;s health issues. I urge you to publish another article on food allergy, this time with accurate information and in a respectful way.</p>
<p>I will follow up with you by phone as I would really like to speak with you, Ms. Sanati. I have learned from experience that by talking, misunderstandings and misinformation can be clarified. Now, more than ever, I would like to offer my continued support in educating.</p>
<p>Sincerely,</p>
<p>Sara Shannon<br />
Sabrina&#8217;s Mom and Food Allergy Advocate</p>
<p><strong>See Also:</strong></p>
<p>• <a href="http://www.allergicliving.com/features.asp?copy_id=41"><strong>Sabrina&#8217;s Law</strong></a>: School Allergy Laws and Policies<br />
• <strong><a href="http://www.allergicliving.com/columns.asp?copy_id=321">Can this be <em>Chatelaine</em>?</a></strong> by Gwen Smith</p>
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		<title>Sara Shannon’s Journey with Sabrina’s Law</title>
		<link>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-sara-shannons-journey/</link>
		<comments>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-sara-shannons-journey/#comments</comments>
		<pubDate>Fri, 02 Jul 2010 18:08:17 +0000</pubDate>
		<dc:creator>Gwen Smith</dc:creator>
				<category><![CDATA[School and Allergies, Asthma]]></category>
		<category><![CDATA[allergy advocacy]]></category>
		<category><![CDATA[Sabrina's Law]]></category>
		<category><![CDATA[Sara Shannon]]></category>

		<guid isPermaLink="false">http://allergicliving.ds566.alentus.com/?p=337</guid>
		<description><![CDATA[She has known a parent’s greatest grief: Sara Shannon lost her daughter Sabrina to anaphylaxis in the 13-year-old’s first year of high school. But out of tragedy, hope has been born: Ontario passed Sabrina’s Law in 2005, which requires schools to have anaphylaxis policies, to reduce allergen exposure and to train all staff in the [...]]]></description>
				<content:encoded><![CDATA[<p>She has known a parent’s greatest grief: Sara Shannon lost her daughter Sabrina to anaphylaxis in the 13-year-old’s first year of high school. But out of tragedy, hope has been born: Ontario passed <a href="http://allergicliving.com/index.php/2010/07/02/sabrinas-law-the-girl-and-the-allergy-law/">Sabrina’s Law in 2005</a>, which requires schools to have anaphylaxis policies, to reduce allergen exposure and to train all staff in the use of an auto-injector.</p>
<p>Sara and her former husband, Mike Shannon, lent Sabrina’s name and her indomitable spirit to that legislation. On that terrible last day of September 30, 2003, Sara had made this promise to her daughter: she would do everything possible to prevent another child from dying of anaphylaxis. That promise has become her mission.</p>
<p>Not content with Sabrina’s Law just for Ontario kids, Sara is promoting similar legislation in other provinces and across the United States. She has transformed herself from a down-to-earth woman from little Pembroke, Ont. – a person who was shy before a microphone – to a passionate advocate who speaks from the heart.</p>
<p>Sara has crisscrossed North America, making innumerable friends among allergy support groups as she spreads the message of why schools need anaphylaxis policies that are enshrined in law. Otherwise, she feels, another tragedy like Sabrina’s is waiting to happen. In February, 2007, she traveled to Pennsylvania to meet with allergy mothers from across America and to watch the signing of a law that finally gives children there the right to carry epinephrine auto-injectors at school.</p>
<p>In 2006, she appeared on TV in Seattle to raise awareness of the risks of anaphylaxis and to fire up a local allergy support group about the possibility of school legislation; she’s helped a legislation lobby get started in Texas and has written to U.S. senators and Canadian premiers, appealing to them as parents.</p>
<p>The Food Allergy Initiative, an organization that gives out millions in allergy research grants, picked Sara to receive the prestigious Daniel Patrick Moynihan award for public service at its New York gala in December of 2006. Presenting was Robert F. Kennedy Jr., the father of a food-allergic child.</p>
<p><strong>&#8220;It’s so important that we get a Sabrina’s Law<br />
passed in another province or state; these<br />
children need to be protected.&#8221;</strong></p>
<p>While appreciative and honored, Sara adds that “balls are wonderful, but we’ve still got to make this a law, we’ve got to make it real.” She berates herself that she’s not doing enough: “It’s so important that we get a Sabrina’s Law passed in <a href="http://allergicliving.com/index.php/2011/12/02/campaign-for-an-anaphylaxis-schools-law-in-quebec/">another province </a>or state; these children need to be protected. If I could do this full-time, I would go full force.”</p>
<p>But Sara is always doing more than she admits. She worked with two Winnipeg documentary makers to bring “Sabrina’s Law,” the film, to Canadian television in the fall (of 2006). She has her sights on British Columbia and Alberta as the provinces she would most like to have adopt an anaphylaxis law. “If we could just get another of the big provinces on board &#8230;.” she says.</p>
<p>Asked what has affected her the most through her journey, Sara answers that it’s the dedicated parents in the allergy community and, of course, their kids. “I’ll never forget being at a conference in Toronto and this little girl came up and gently touched my arm. She said to me, ‘thank you’. Our children are so important, that’s what touches me the most.”</p>
<p><em>First published in </em>Allergic Living<em> magazine, Spring 2007 (c) Copyright AGW Publishing Inc.<br />
To comment, write: editor@allergicliving.com</em></p>
<p><em><strong>To subscribe or order a single issue</strong>, click </em><a href="http://allergicliving.com/subscribe.asp"><em>here</em></a><em>.</em></p>
<p>For <strong>School Anaphylaxis Legislation and Policies</strong>, click <a href="http://www.allergicliving.com/features.asp?copy_id=41" target="_self">here</a>.</p>
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		<title>Sabrina’s Law Turns 5 Years Old</title>
		<link>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-turns-5-years-old/</link>
		<comments>http://allergicliving.com/index.php/2010/07/02/sabrinas-law-turns-5-years-old/#comments</comments>
		<pubDate>Fri, 02 Jul 2010 18:07:21 +0000</pubDate>
		<dc:creator>Gwen Smith</dc:creator>
				<category><![CDATA[Food Allergy]]></category>
		<category><![CDATA[Sabrina's Law]]></category>
		<category><![CDATA[Sara Shannon]]></category>

		<guid isPermaLink="false">http://allergicliving.ds566.alentus.com/?p=335</guid>
		<description><![CDATA[On May 16, 2005, a large group of parents and their kids with food allergies sat in the public gallery nosebleed section of the Ontario legislature, waiting for a bill to come before the politicians assembled below. The “no-peanut” gallery was shushed by security guards who countenanced not so much as a whisper. On the [...]]]></description>
				<content:encoded><![CDATA[<p>On May 16, 2005, a large group of parents and their kids with food allergies sat in the public gallery nosebleed section of the Ontario legislature, waiting for a bill to come before the politicians assembled below. The “no-peanut” gallery was shushed by security guards who countenanced not so much as a whisper. On the floor of the legislature sat Sara and Mike Shannon, the parents of the Sabrina, the student who had so tragically lost her life in September 2003 following an anaphylactic reaction at school.</p>
<p>Finally, the moment arrived. Bill 3: An Act to Protect Anaphylactic Pupils, was introduced. “Yea,” “yea,” “yea,” came the chorus of votes, as politicians from three political parties rose, one by one, to unanimously pass the law that was now dubbed Sabrina’s Law.</p>
<p>In an outpouring of joy and emotion, the gallery watchers spilled out the upper exits and into the hallway. There, smiles mixed with tears as the import sunk in: Canada’s most populous province would now require that every school principal establish an anaphylaxis plan including: strategies to reduce risks of allergen exposures and the training of staff for allergy emergencies and on the use of auto-injectors. No more would anaphylaxis policy depend on the kindness of principals; it was the law.</p>
<p>At the centre of the hallway hoopla stood Cindy Paskey, president of the Niagara support group NASK,  the woman who gave up her day job for 2½ years to spearhead the grassroots campaign of letter-writing and petition-signing for this law. She’d found a kindred spirit in Dave Levac, the MPP who introduced Bill 3 and fought to see it finally become reality. Today, Paskey’s most vivid recollections of that momentous day in May are of the vote “like music to my ears,” and of the emotions in meeting the Shannons whose courage “turned a tragedy into triumph”.</p>
<p>Another snapshot etched in memory is of longtime anaphylaxis advocate Marilyn Allen, “who congratulated me and then told me quietly that that day was the birthday of her daughter.” Allen’s daughter Robyn died of an anaphylactic reaction to peanut in March, 1990. On May 16, 2005, Robyn would have turned 31. Paskey took the coincidence as “a sign of rightness in the universe.”</p>
<h4><strong> </strong></h4>
<p><a href="http://www.allergicliving.com/features.asp?copy_id=41" target="_blank"><strong>Sabrina’s Law</strong></a> really was a team effort. It was so important that Sara Shannon and her former husband, Mike, came forward to allow their daughter’s name to be used on this law. She became a face for an otherwise anonymous condition that so many still didn’t understand. When approached by Anaphylaxis Canada, also working to pass Bill 3, Sara and Mike Shannon didn’t hesitate to get involved.</p>
<p>Sara had promised her dying daughter that she would work “to prevent this fate from happening to another child.” And she has, criss-crossing North America in support of anaphylaxis laws in provinces and states, telling the story of Sabrina’s Law and how accommodations can work.</p>
<p>Paskey sees a ripple effect of the law as well in the way the food manufacturers are now producing allergy-safe foods. And she hopes that its influence will grow and spread to colleges and workplaces. “They could provide risk-reduction measures, training on emergency response and on careful food preparation in cafeterias. That’s where I hope to see it go.”</p>
<p>Reflecting on the impact of Sabrina’s Law as it hits the fifth anniversary, Paskey strongly believes “it has saved lives”.</p>
<p>She has heard stories from public health nurses and parents who’ve spoken of children having reactions at school and of staff recognizing the symptoms and responding properly – in each case, an auto-injector was used promptly. What gives Paskey the single biggest sense of accomplishment is to see that allergic “children can be safe, feel safe and be included at school.”</p>
<h2>The Sabrina Award</h2>
<p><strong>Anaphylaxis Canada</strong> has announced The Sabrina Shannon Memorial Award for Canadian students. The award is dedicated to the life of Sabrina Shannon, the inspirational teenager who tragically suffered a fatal anaphylactic reaction in 2003.</p>
<p>Two awards of $1,000 each will be granted: one for a student entering the first year of post-secondary education, the other for a student already in a post-secondary program.</p>
<p>Applications will be evaluated on a 500-word essay that describes a student’s efforts to raise awareness about allergies and anaphylaxis. June 15 is the deadline for submissions.</p>
<p>For more info, contact <a href="mailto:info@anaphylaxis.ca" target="_blank">info@anaphylaxis.ca</a>. Download the application at <a href="http://www.whyriskit.ca/" target="_blank">www.whyriskit.ca</a>.</p>
<p><em>First published in </em><strong>Allergic Living</strong><em> magazine, <a href="http://www.allergicliving.com/issues.asp?issue_id=23">Spring 2010</a> 5th anniversary edition.<br />
To order that issue or to subscribe, click </em><a href="http://www.allergicliving.com/subscribe.asp"><em>here</em></a><em>.</em></p>
<p><em>© Copyright AGW Publishing Inc.</em></p>
<p><strong>See Also:</strong></p>
<ul>
<li><a href="http://www.allergicliving.com/features.asp?copy_id=41"><strong>Sabrina&#8217;s Law</strong></a>: School Allergy Laws and Policies</li>
<li>Our award-winning Sabrina&#8217;s <a href="http://www.allergicliving.com/features.asp?copy_id=17" target="_blank">Story</a></li>
<li>Sara Shannon&#8217;s <a href="http://www.allergicliving.com/features.asp?copy_id=104" target="_blank">Journey</a></li>
</ul>
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