The web can be a great resource after diagnosis, but navigating misinformation is an essential skill. On average, people with celiac disease wait up to 10 years to get an accurate diagnosis. When they do get one, they are often told to stop eating gluten and “Google it” for more information. For so many of… Read more »
The term “gluten-free” has lost sincerity. With online parodies poking fun at the diet, and celebrities touting its perceived health benefits, it’s easy to see that “gluten-free” has attained fad status. Popularity does bring options, and to some extent awareness, but the infusion into pop culture has led “gluten-free” to completely overshadow celiac disease. The result? Those of us living with celiac disease aren’t… Read more »
Don’t allow a celiac diagnosis to leave you emotionally and socially boxed in. I stood 5 feet 9 inches tall and weighed all of 100 pounds. My teeth cracked under pressure, my hair fell out in clumps, and excruciating migraines and bouts of diarrhea kept me awake at night. To say I was suffering with poor health 25 years ago, in the time before… Read more »
“Consider that there is about 20 feet of intestine coiled in the body and it’s easy to understand. That’s a lot of intestine that has to get better before we can call it healed.”
Video goes viral, while program guides the ‘how-tos’ of conversation.
From gluten content levels to the risks of skin lotions, a lot of fiction gets mashed into gluten-free “facts”. Even our wise celiac disease community can fall prey to fiction that circulates in the media or misconceptions from confusing terminology. It’s time to dispel some of the top myths. Myth: Celiac disease is on the rise because today’s wheat… Read more »
A California woman alleges that the Chinese food chain discriminates against those with celiac by charging more for gluten-free meals.
What seems like a harmless experiment could do more harm than good. A few years ago, a gluten-free manufacturer approached me to partner on a major social media campaign. The theme: “Try a gluten-free diet for two weeks and see how you feel.” I said no. While the promotion probably would have helped certain people identify symptoms that suggest a… Read more »
How many times have you closed your eyes, taken a bite and thought: “I hope this doesn’t make me sick?” For those of us with celiac disease or gluten sensitivity, that question arises every time we put food in our mouths. Dietary compliance can seem like a black-and-white issue. You either stick to your diet, or you don’t. But there is a gray area,… Read more »
Every Celiac Awareness Month, I can’t help but think back to my diagnosis over 20 years ago and how I’ve come full circle. 20 years ago, I was weak, frail and convinced I had cancer, somewhere, and that the doctors wouldn’t find it in time. Today, I am stronger than I have ever been. Life… Read more »